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伙伴关系对德国长期神经康复的影响:一项定性回顾性研究方案

Influence of Partnership Relationships on Long-Term Neurological Rehabilitation in Germany: Protocol for a Qualitative Retrospective Study.

作者信息

von Bosse Alexa, König Peter, Jansen Eva

机构信息

Institute of Medical Sociology and Rehabilitation Science, Charité - Universitätsmedizin Berlin corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.

Faculty Health Safety Society, Furtwangen University, Furtwangen, Germany.

出版信息

JMIR Res Protoc. 2025 Jan 13;14:e63949. doi: 10.2196/63949.

Abstract

BACKGROUND

Acquired neurological diseases entail significant changes and influence the relationship between a patient and their significant other. In the context of long-term rehabilitation, those affected collaborate with health care professionals who are expected to have a positive impact on the lives of the affected individuals.

OBJECTIVE

This study aims to examine the changes in the relationship between the patient and their loved ones due to acquired neurological disorders and the influence of health care professionals on this relationship.

METHODS

Through sociogenetic type building, we will identify different types of patient-caregiver dyads and their effects on health care professionals and vice versa. The results will then be integrated into a model based on the theory of symbolic interactionism and Baxter's Relational Dialectics Theory.

RESULTS

This study is not funded and was approved by the ethics committee of the German Society for Nursing Science, and it complies with the Declaration of Helsinki. The data collection started in June 2024 based on narrative couple interviews and is running. We assume that patients and their relatives will demonstrate heterogeneity as individuals, as well as in their interactions within the dyad, regarding certain orientations such as coping with illness, motivation for therapy, and coping strategies.

CONCLUSIONS

Our findings address a biopsychosocial perspective that enhances treatment approaches in neurological long-term care. Understanding the influence of professionals on dyadic couple relationships can improve rehabilitation effectiveness by tailoring therapeutic approaches to various patient types, relatives, and dyadic relationship constellations. This fosters patient- and family-centered therapy in line with holistic care.

INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/63949.

摘要

背景

后天性神经疾病会带来重大变化,并影响患者与其重要他人之间的关系。在长期康复的背景下,患者会与医疗保健专业人员合作,这些专业人员有望对患者的生活产生积极影响。

目的

本研究旨在探讨后天性神经疾病导致的患者与其亲人关系的变化,以及医疗保健专业人员对这种关系的影响。

方法

通过社会遗传学类型构建,我们将识别不同类型的患者-照顾者二元组及其对医疗保健专业人员的影响,反之亦然。然后,研究结果将被整合到一个基于符号互动主义理论和巴克斯特关系辩证法理论的模型中。

结果

本研究未获资助,并获得了德国护理科学协会伦理委员会的批准,且符合《赫尔辛基宣言》。数据收集于2024年6月开始,基于对夫妻的叙事访谈,目前仍在进行中。我们假设患者及其亲属在应对疾病、治疗动机和应对策略等特定方面,作为个体以及在二元组内的互动中会表现出异质性。

结论

我们的研究结果从生物心理社会角度出发,强化了神经疾病长期护理中的治疗方法。了解专业人员对二元夫妻关系的影响,通过针对不同患者类型、亲属和二元关系组合调整治疗方法,可以提高康复效果。这促进了以患者和家庭为中心的治疗,符合整体护理理念。

国际注册报告标识符(IRRID):DERR1-10.2196/63949

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd62/11773283/30950a8773e4/resprot_v14i1e63949_fig1.jpg

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