Hegarty Benjamin, Wolter Alegra, Handayani Amalia Puri, Marian Kevin, Newland Jamee, Oetomo Dede, Praptoraharjo Ignatius, Kelly-Hanku Angela
The Kirby Institute, UNSW Sydney, Sydney, Australia.
University Centre of Excellence - ARC Health Policy and Social Innovation, Atma Jaya Catholic University of Indonesia (UCoE - ARC HPSI AJCUI), Jakarta, Indonesia.
BMC Med Ethics. 2025 Jan 13;26(1):3. doi: 10.1186/s12910-024-01134-9.
The World Professional Association for Transgender Health guidelines Standards of Care 8 draw on ethical arguments based on individual autonomy, to argue that healthcare and other professionals should be advocates for trans people. Such guidelines presume the presence of medical services for trans people and a degree of consensus on medical ethics. Very little is known, however, about the ethical challenges associated with both providing and accessing trans healthcare, including gender affirmation, in the Global South. In light of the challenges associated with medical and legal gender affirmation in Indonesia, we conducted a qualitative study to understand the views of trans people, healthcare providers, and legal practitioners.
In this qualitative study, we drew on a participatory methodology to conduct 46 semi-structured interviews between October and December 2023, with trans people (10 trans feminine people and 10 trans masculine people, each interviewed twice) and key informants (three healthcare providers and three lawyers and paralegals). Trans people were a central part of the research team from inception through to analysis and writing. Participants were recruited via community-led sampling. Data analysis of interview data took place through an immersion/crystallisation technique and preliminary inductive coding which highlighted key quotes. We focused on an inductive analysis using participant narratives to identify key concepts in the ethics of gender affirmation in Indonesia.
We characterize the ethics of supportive healthcare workers, community members, and family members, as that akin to "accomplices," a concept of ethics used in theories of racial justice which evaluate a willingness to support people to navigate laws and regulations which perpetuate injustices and violence. Overall, both trans people and key informants shared an understanding that the legal status of gender-affirming medical care was particularly ambiguous in Indonesia due to a lack of clarity in both laws and regulations. For trans participants, ethical arguments for the validity of legal and medical gender affirmation was premised on evidence that their gender identity and expression was already recognized within society, even if limited to immediate friends and family. Given that all participants expressed a desire for gender affirmation, but such services were widely unavailable, accomplices played a crucial role in supporting trans people to access healthcare.
An empirical study based on an "ethics from below" helps to show that arguments grounded in autonomy, or based on biomedical evidence, are unlikely to alter unjust laws or facilitate a change to pathologizing guidelines governing understanding of trans people's healthcare and legal needs in Indonesia. We provide an analysis that is sensitive to the ethics of facilitating gender affirmation in a context where that process is inherently social, and often articulated in relation to a prevailing religious morality.
世界跨性别健康专业协会的《护理标准8》借鉴了基于个人自主权的伦理观点,主张医疗保健及其他专业人员应成为跨性别者的倡导者。此类指南假定存在针对跨性别者的医疗服务以及在医学伦理方面达成了一定程度的共识。然而,对于在全球南方地区提供和获取跨性别医疗保健(包括性别肯定治疗)所涉及的伦理挑战,我们知之甚少。鉴于印度尼西亚在医疗和法律性别肯定方面存在挑战,我们开展了一项定性研究,以了解跨性别者、医疗保健提供者和法律从业者的观点。
在这项定性研究中,我们采用参与式方法,于2023年10月至12月期间进行了46次半结构化访谈,访谈对象包括跨性别者(10名跨性别女性和10名跨性别男性,每人接受两次访谈)以及关键信息提供者(三名医疗保健提供者、三名律师和律师助理)。从研究开始到分析和撰写阶段,跨性别者都是研究团队的核心成员。参与者通过社区主导的抽样方式招募。访谈数据的分析采用沉浸/结晶技术和初步归纳编码,突出关键引述。我们专注于使用参与者的叙述进行归纳分析,以确定印度尼西亚性别肯定伦理中的关键概念。
我们将支持性医疗保健工作者、社区成员和家庭成员的伦理特征描述为类似于“同谋”,这是种族正义理论中使用的一个伦理概念,用于评估支持人们应对使不公正和暴力长期存在的法律法规的意愿。总体而言,跨性别者和关键信息提供者都一致认为,由于法律法规不明确,印度尼西亚性别肯定医疗护理的法律地位特别模糊。对于跨性别参与者来说,法律和医疗性别肯定有效性的伦理论据基于这样的证据,即他们的性别认同和表达在社会中已经得到认可,即使仅限于直系朋友和家人。鉴于所有参与者都表达了对性别肯定的渴望,但此类服务普遍无法获得,“同谋”在支持跨性别者获得医疗保健方面发挥了关键作用。
一项基于“自下而上的伦理”的实证研究有助于表明,基于自主权或生物医学证据的论点不太可能改变不公正的法律,也不太可能促使改变将跨性别者的医疗保健和法律需求理解为病态的指导方针。我们提供了一种分析,这种分析对在一个过程本质上是社会性的且往往与占主导地位的宗教道德相关联的背景下促进性别肯定的伦理很敏感。