Vereijken Frances R, Giesbers Sanne A H, Jahoda Andrew, Embregts Petri J C M
Tranzo, Tilburg School of Social and Behavioural Sciences, Tilburg University, Tilburg, the Netherlands.
Institute of Health and Wellbeing, University of Glasgow, Glasgow, UK.
J Intellect Dev Disabil. 2024 Sep;49(3):298-310. doi: 10.3109/13668250.2023.2254942. Epub 2023 Dec 22.
Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents' experiences of planning the move of their young adult offspring to residential settings offering 24-hour support.
Interviews were conducted with eleven parents whose offspring moved to residential settings within the past 5 years (five fathers; six mothers). They consisted of structured questions about planning their offsprings' moves and semi-structured questions about parents' experiences.
Content analysis of the structured questions revealed reasons parents began thinking about the moves and routes to finding information. The thematic analysis highlighted the emotional challenges parents faced.
The findings highlight the need to address this neglected topic and ensure that practical and emotional support is put in place to plan positive futures, rather than relying on families to use their own initiative or waiting until a crisis occurs.
搬离家庭住所是智障人士及其家庭的一个关键转变。然而，关于父母规划其成年子女搬至提供24小时支持的居住环境的经历，相关研究甚少。
对11位子女在过去5年内搬至居住环境的父母进行了访谈（5位父亲；6位母亲）。访谈包括关于规划子女搬迁的结构化问题以及关于父母经历的半结构化问题。
对结构化问题的内容分析揭示了父母开始考虑搬迁的原因以及获取信息的途径。主题分析突出了父母面临的情感挑战。
研究结果凸显了应对这一被忽视话题的必要性，并确保提供实际和情感支持，以规划积极的未来，而不是依赖家庭自行采取行动或等到危机发生。
