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在他人支持下生活:轻度智力残疾者的经历

Living with support: Experiences of people with mild intellectual disability.

作者信息

Giesbers Sanne A H, Hendriks Lex, Jahoda Andrew, Hastings Richard P, Embregts Petri J C M

机构信息

Tranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.

Dichterbij Innovation and Science, Gennep, The Netherlands.

出版信息

J Appl Res Intellect Disabil. 2019 Mar;32(2):446-456. doi: 10.1111/jar.12542. Epub 2018 Oct 26.

Abstract

BACKGROUND

To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks.

METHOD

Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants' support experiences were established using Interpretative Phenomenological Analysis.

RESULTS

Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees' place in the world.

CONCLUSIONS

Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability.

摘要

背景

为了增强智障人士的社会融入,政策旨在扩大非正式支持网络。然而,工作人员在他们的支持网络中仍然发挥着至关重要的作用。

方法

对六名生活在社区环境中的轻度智障人士进行了半结构化访谈。采用解释现象学分析法深入了解参与者的支持经历。

结果

确定了三个主要主题:置于个人经历中的与工作人员的关系、组织背景下与工作人员的关系、工作人员的支持以及受访者在世界中的位置。

结论

与工作人员的关系往往是参与者最亲密、最重要的社会关系之一。由于生活在社区不一定能让参与者实现有意义的融入,研究结果表明工作人员在支持和促进智障人士的友谊及亲密关系方面发挥着重要作用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3dcd/7379989/6187e83f3f87/JAR-32-446-g001.jpg

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