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“这简直是一场情绪的过山车!!!” 加纳一家三级医院中寻求护理的早产儿母亲的经历:一项质性现象学研究。

'It is an emotional rollercoaster!!!' Experiences of mothers of preterm newborns seeking care at a tertiary hospital in Ghana: a qualitative phenomenological study.

作者信息

Nukpezah Ruth Nimota, Atanuriba Gideon Awenabisa

机构信息

Department of Preventive Health Nursing, University for Development Studies, Tamale, Ghana.

Northern Regional Hospital, Tamale, Northern Region, Ghana

出版信息

BMJ Open. 2025 Jan 15;15(1):e093173. doi: 10.1136/bmjopen-2024-093173.

DOI:10.1136/bmjopen-2024-093173
PMID:39819941
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11751851/
Abstract

OBJECTIVE

To describe, through the phenomenological lens, the experiences of mothers following preterm birth and admitted at a tertiary hospital.

METHODS

DESIGN: Descriptive phenomenological study.

SETTING

Neonatal intensive care unit (NICU) of a tertiary hospital in Ghana.

POPULATION

Mothers who delivered prematurely and were admitted.

MAIN OUTCOME MEASURES

Experiences of mothers who delivered prematurely and had their neonates admitted to the NICU.

RESULTS

Four themes and three subthemes were realised: (1) maternal anxiety about unknown outcomes of the newborn condition, (2) the positive impact of family-centred care, (3) maternal roles for preterm care and (4) poor support for maternal involvement in care.

CONCLUSIONS

Mothers of preterm newborns sustained varying degrees of emotional trauma and faced challenges that deprived them of active involvement in their newborn care. Despite these, family-centred care was impactful and gave a window of opportunity for mothers to provide maternal roles. We highly recommend tailored emotional and psychological supports for mothers who have delivered prematurely, as it is crucial to ensuring both maternal and neonatal survival.

摘要

目的

通过现象学视角描述早产并入住三级医院的母亲们的经历。

方法

设计:描述性现象学研究。

地点

加纳一家三级医院的新生儿重症监护病房(NICU)。

研究对象

早产并入院的母亲。

主要观察指标

早产且新生儿入住NICU的母亲的经历。

结果

确定了四个主题和三个子主题:(1)母亲对新生儿状况未知结果的焦虑,(2)以家庭为中心的护理的积极影响,(3)早产护理中的母亲角色,(4)母亲参与护理的支持不足。

结论

早产新生儿的母亲遭受了不同程度的情感创伤,面临着使她们无法积极参与新生儿护理的挑战。尽管如此,以家庭为中心的护理很有成效,为母亲发挥母亲角色提供了机会之窗。我们强烈建议为早产母亲提供量身定制的情感和心理支持,因为这对于确保母婴存活至关重要。

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本文引用的文献

1
Qualitative analysis of mothers' perception related to the delivery of information regarding preterm births.母亲对早产儿出生信息传达的感知的定性分析。
BMC Pregnancy Childbirth. 2024 Apr 12;24(1):272. doi: 10.1186/s12884-024-06404-3.
2
Perception and experiences of adolescent mothers and communities in caring for their preterm babies: findings from an in-depth study in rural Bangladesh.农村孟加拉国深入研究:照顾早产儿的青少年母亲和社区的认知与体验。
BMC Pregnancy Childbirth. 2024 Feb 17;24(1):145. doi: 10.1186/s12884-024-06345-x.
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New World Health Organization recommendations for care of preterm or low birth weight infants: health policy.
世界卫生组织关于早产或低体重婴儿护理的新建议:卫生政策
EClinicalMedicine. 2023 Aug 16;63:102155. doi: 10.1016/j.eclinm.2023.102155. eCollection 2023 Sep.
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Breastfeeding needs of mothers of preterm infants in China: a qualitative study informed by the behaviour change wheel.中国早产儿母亲母乳喂养需求的定性研究:基于行为改变轮的研究。
Int Breastfeed J. 2023 Sep 1;18(1):50. doi: 10.1186/s13006-023-00587-9.
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Maternal mental health after infant discharge: a quasi-experimental clinical trial of family integrated care versus family-centered care for preterm infants in U.S. NICUs.母婴出院后心理健康:美国新生儿重症监护病房实施家庭综合护理与以家庭为中心护理对比的准实验性临床试验
BMC Pediatr. 2023 Aug 10;23(1):396. doi: 10.1186/s12887-023-04211-x.
6
Women's lived experiences of preterm birth and neonatal care for premature infants at a tertiary hospital in Ghana: A qualitative study.加纳一家三级医院中女性早产及早产儿新生儿护理的生活经历:一项定性研究。
PLOS Glob Public Health. 2022 Dec 1;2(12):e0001303. doi: 10.1371/journal.pgph.0001303. eCollection 2022.
7
'They said, let's teach you how you are going to care for the child at home…': caregivers' and healthcare worker's perceptions and experiences of post-discharge preterm care in eastern Uganda.他们说,让我们来教你如何在家照顾孩子……:乌干达东部的照顾者和医护人员对早产儿出院后护理的看法和体验。
BMC Health Serv Res. 2022 Dec 14;22(1):1521. doi: 10.1186/s12913-022-08894-3.
8
Breastfeeding initiation, duration, and experiences of mothers of late preterm twins: a mixed-methods study.母乳喂养启动、持续时间和晚期早产儿双胞胎母亲的体验:一项混合方法研究。
Int Breastfeed J. 2022 Sep 8;17(1):68. doi: 10.1186/s13006-022-00507-3.
9
Challenges to the right to health in sub-Saharan Africa: reflections on inequities in access to dialysis for patients with end-stage kidney failure.撒哈拉以南非洲地区健康权面临的挑战:对终末期肾衰竭患者透析机会不均等的思考。
Int J Equity Health. 2022 Sep 5;21(1):126. doi: 10.1186/s12939-022-01715-3.
10
"What are you carrying?" Experiences of mothers with preterm babies in low-resource setting neonatal intensive care unit: a qualitative study.母亲携带物品的体验:资源匮乏环境下新生儿重症监护病房早产儿母亲的定性研究
BMJ Open. 2021 Sep 14;11(9):e043989. doi: 10.1136/bmjopen-2020-043989.