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姑息治疗临床医生应了解的关于风湿病学的十大技巧。

Top Ten Tips Palliative Care Clinicians Should Know About Rheumatology.

作者信息

Herndon Shannon, Kimball Jack, Ross Laura, Homann Sarah, Faison Maya N, Lee Yu-Lin Amy, Marks Adam, Weinmann Sophia C, Maheswaranathan Mithu, Leverenz David, Jones Christopher A

机构信息

Department of Medicine, Division of Rheumatology and Immunology, Duke University School of Medicine, Durham, North Carolina, USA.

Department of Medicine, Division of Geriatrics and Palliative Care, Duke University Health System, Durham, North Carolina, USA.

出版信息

J Palliat Med. 2025 Jan 22. doi: 10.1089/jpm.2024.0520.

Abstract

Systemic autoimmune rheumatic diseases (SARDs) consist of a broad range of immune-mediated multisystem diseases. They are chronic, incurable illnesses that often present in early to mid-life and can be associated with a high symptom burden, disability, and early mortality. Treatment guidelines for similar chronic, life-limiting conditions with uncertain disease courses now recommend palliative care (PC) assessment at the time of diagnosis. Recently, the first rheumatology treatment guidelines to recommend PC were also published. Integration of PC into rheumatology offers an opportunity to improve quality of life and deliver better goal-concordant care for people with severe rheumatic disease. This article provides 10 tips to guide PC clinicians when caring for people with rheumatic diseases.

摘要

系统性自身免疫性风湿病(SARDs)包括一系列广泛的免疫介导的多系统疾病。它们是慢性、无法治愈的疾病,通常在中青年时期出现,可能伴有高症状负担、残疾和早期死亡。对于疾病进程不确定的类似慢性、危及生命的疾病,治疗指南现在建议在诊断时进行姑息治疗(PC)评估。最近,首批推荐PC的风湿病治疗指南也已发布。将PC纳入风湿病学为改善严重风湿病患者的生活质量和提供更好的目标一致的护理提供了机会。本文提供了10条建议,以指导PC临床医生护理风湿病患者。

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