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致命细节:公开可得的人类狂犬病信息来源有多清晰和完整?

The Deadly Details: How Clear and Complete Are Publicly Available Sources of Human Rabies Information?

作者信息

Patane Natalie, Eades Owen, Morris Jennifer, Mac Olivia, McCaffery Kirsten, McGuinness Sarah L

机构信息

Infectious Diseases Epidemiology Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC 3004, Australia.

Independent Consumer Advisor, Melbourne, VIC 3000, Australia.

出版信息

Trop Med Infect Dis. 2025 Jan 7;10(1):16. doi: 10.3390/tropicalmed10010016.

Abstract

Human rabies is preventable but almost always fatal once symptoms appear, causing 59,000 global deaths each year. Limited awareness and inconsistent access to post-exposure prophylaxis hinder prevention efforts. To identify gaps and opportunities for improvement in online rabies information, we assessed the readability, understandability, actionability, and completeness of online public rabies resources from government and health agencies in Australia and similar countries, with the aim of identifying gaps and opportunities for improvement. We identified materials via Google and public health agency websites, assessing readability using the Simple Measure of Gobbledygook (SMOG) index and understandability and actionability with the Patient Education Materials Tool for Print materials (PEMAT-P). Completeness was assessed using a framework focused on general and vaccine-specific rabies information. An analysis of 22 resources found a median readability of grade 13 (range: 10-15), with a mean understandability of 66% and mean actionability of 60%; both below recommended thresholds. Mean completeness was 79% for general rabies information and 36% for vaccine-specific information. Visual aids were under-utilised, and critical vaccine-specific information was often lacking. These findings highlight significant barriers in rabies information for the public, with most resources requiring a high literacy level and lacking adequate understandability and actionability. Improving readability, adding visual aids, and enhancing vaccine-related content could improve accessibility and support wider prevention efforts.

摘要

人类狂犬病是可预防的,但一旦出现症状几乎总是致命的,每年在全球造成59000人死亡。对暴露后预防的认识有限以及获取途径不一致阻碍了预防工作。为了确定在线狂犬病信息在改进方面的差距和机会,我们评估了澳大利亚及类似国家政府和卫生机构在线公共狂犬病资源的可读性、可理解性、可操作性和完整性,旨在找出改进的差距和机会。我们通过谷歌和公共卫生机构网站查找资料,使用简化的难解词测量(SMOG)指数评估可读性,使用印刷材料患者教育材料工具(PEMAT-P)评估可理解性和可操作性。使用一个侧重于一般和疫苗特异性狂犬病信息的框架评估完整性。对22份资源的分析发现,中位数可读性为13年级(范围:10 - 15),平均可理解性为66%,平均可操作性为60%;均低于推荐阈值。一般狂犬病信息的平均完整性为79%,疫苗特异性信息的平均完整性为36%。视觉辅助工具利用不足,关键的疫苗特异性信息往往缺失。这些发现凸显了面向公众的狂犬病信息存在的重大障碍,大多数资源需要较高的文化水平,且缺乏足够的可理解性和可操作性。提高可读性、增加视觉辅助工具以及加强与疫苗相关的内容可以提高可及性并支持更广泛的预防工作。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ed09/11768519/deeefcfb92dc/tropicalmed-10-00016-g001.jpg

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