Peng Keyuan, Zhu Pingting, Gu Xinyue, Hu Chenglei, Teng Yi, Gu Zhie
School of Nursing, School of Public Health, Yangzhou University, Yangzhou, Jiangsu, People's Republic of China.
School of Nursing, School of Public Health, Yangzhou University, Yangzhou, Jiangsu, People's Republic of China
Arch Dis Child. 2025 Jun 19;110(7):533-538. doi: 10.1136/archdischild-2024-328010.
The prevalence of inflammatory bowel disease (IBD) among Chinese adolescents has continued to increase in recent years. Adolescents with IBD interrupted their schooling due to the diagnosis and treatment of the disease. And when the condition stabilises, they will return to school. However, as a lifelong and recurrent disease, the instability of the disease after returning to school affects normal school participation.
This study aims to explore the psychological and life challenges of adolescents with IBD in the complex and intertwined situations of disease management, adolescent development and school social interactions.
A qualitative descriptive study was conducted. Qualitative data were collected from adolescents aged 11-19 (n=21; 7 males and 14 females) through in-depth, semistructured interviews. Reflexive thematic analysis was employed to ensure rigour.
The results highlight the challenges of returning to school for adolescents with IBD. There are three emerging themes and nine subthemes (in parentheses). (1) Problems of continued disease management (occasional uncontrollable flare-ups of symptoms, regular medical checkups disrupting daily school programming and shame from medication management). (2) Difficulties of impaired school functioning (difficulty keeping up with academic study and participating in high-intensity sports activities). (3) Challenges of maintaining friendship (burden of disease disclosure, difficulty in sharing food with friends, common topics of conversation decreasing and absence of group activities).
We call on medical institutions and schools to strengthen cooperation and further optimise support measures for this group through the intermediary role of school health clinics.
近年来，中国青少年炎症性肠病（IBD）的患病率持续上升。患有IBD的青少年因疾病的诊断和治疗而中断学业。病情稳定后，他们将重返校园。然而，作为一种终身复发性疾病，返校后病情的不稳定影响了正常的学校生活。
本研究旨在探讨IBD青少年在疾病管理、青少年发育和学校社交互动等复杂交织情况下所面临的心理和生活挑战。
进行了一项定性描述性研究。通过深入的半结构化访谈，收集了11至19岁青少年（n = 21；7名男性和14名女性）的定性数据。采用反思性主题分析以确保严谨性。
结果突出了IBD青少年返校所面临的挑战。出现了三个主题和九个子主题（括号内）。（1）持续疾病管理问题（症状偶尔无法控制的发作、定期体检扰乱日常学校安排以及药物管理带来的羞耻感）。（2）学校功能受损的困难（跟上学业和参加高强度体育活动的困难）。（3）维持友谊的挑战（疾病披露的负担、难以与朋友分享食物、共同话题减少以及缺乏团体活动）。
我们呼吁医疗机构和学校加强合作，并通过学校医务室的中介作用，进一步优化针对该群体的支持措施。
