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衰老研究中代理报告的挑战与建议:简要评论

Challenges and Recommendations for Proxy Reporting in Aging Research: A Brief Commentary.

作者信息

Baidoo Selina, Salihu Ojonimi S, Salihu Ejura Y

机构信息

Department of Sociology, Western Michigan University, Kalamazoo, USA.

Department of Family Medicine and Community Health, University of Wisconsin-Madison, Madison, USA.

出版信息

Cureus. 2024 Dec 29;16(12):e76587. doi: 10.7759/cureus.76587. eCollection 2024 Dec.

DOI:10.7759/cureus.76587
PMID:39881897
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11775282/
Abstract

The US has an aging population that is under-represented in research. Many older adults face barriers to research participation, such as mobility issues, comorbidities, and declining physical and cognitive health, which make it harder for them to understand study processes and give informed consent. Proxies can be family members, paid or unpaid caregivers, or healthcare providers who provide health information for older adults. Proxy reporting is an important resource in aging research, but it is fraught with several challenges that can impact data accuracy and validity. In this paper, we describe these challenges and possible solutions to enhance proxy reporting and the participation of older adults in aging research.

摘要

美国人口老龄化,而老年人在研究中的代表性不足。许多老年人在参与研究时面临障碍,如行动不便、合并症以及身体和认知健康状况下降,这使得他们更难理解研究过程并给予知情同意。代理人可以是家庭成员、有偿或无偿护理人员,或为老年人提供健康信息的医疗保健提供者。代理人报告是老龄化研究中的一项重要资源,但它面临着几个可能影响数据准确性和有效性的挑战。在本文中,我们描述了这些挑战以及增强代理人报告和老年人参与老龄化研究的可能解决方案。

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本文引用的文献

1
Alignment of parent-proxy report and teen self-report of adverse childhood experiences among U.S. teens.美国青少年的家长-代理报告和青少年自我报告的不良儿童经历的一致性。
Ann Epidemiol. 2024 Nov;99:32-40. doi: 10.1016/j.annepidem.2024.09.001. Epub 2024 Sep 23.
2
A qualitative exploration of challenges recruiting older adults for a co-designed holistic intervention to manage and reduce frailty: lessons learnt amidst the COVID-19 pandemic in Melbourne, Australia.一项关于在澳大利亚墨尔本应对 COVID-19 大流行期间,为制定和实施全面干预措施以管理和减少衰弱而招募老年人所面临挑战的定性探索:经验教训。
BMJ Open. 2024 May 23;14(5):e082618. doi: 10.1136/bmjopen-2023-082618.
3
Caring for an Aging US Population-the Good News and the Bad News.照顾美国老龄人口——好消息与坏消息
JAMA Health Forum. 2024 May 3;5(5):e241893. doi: 10.1001/jamahealthforum.2024.1893.
4
Measuring the reliability of proxy respondents in behavioural assessments: an open question.代理应答者在行为评估中可靠性的衡量:一个开放性问题。
Aging Clin Exp Res. 2023 Oct;35(10):2173-2190. doi: 10.1007/s40520-023-02501-z. Epub 2023 Aug 4.
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Challenges and opportunity in mobility among older adults - key determinant identification.老年人流动性方面的挑战与机遇 - 关键决定因素识别。
BMC Geriatr. 2023 Jul 21;23(1):447. doi: 10.1186/s12877-023-04106-7.
6
Do we agree or disagree? A systematic review of the application of preference-based instruments in self and proxy reporting of quality of life in older people.我们是否同意?偏好量表在老年人自我报告和代理报告生命质量中的应用的系统评价。
Soc Sci Med. 2022 Jul;305:115046. doi: 10.1016/j.socscimed.2022.115046. Epub 2022 May 25.
7
Agreement between older adult patient and caregiver proxy symptom reports.老年患者与照顾者代理症状报告之间的一致性。
J Patient Rep Outcomes. 2022 May 14;6(1):50. doi: 10.1186/s41687-022-00457-8.
8
Transport and Mobility Needs for an Ageing Society from a Policy Perspective: Review and Implications.从政策角度看老龄化社会的交通和出行需求:综述与启示
Int J Environ Res Public Health. 2021 Nov 10;18(22):11802. doi: 10.3390/ijerph182211802.
9
Accuracy of self- and proxy-rated hearing among older adults with and without cognitive impairment.老年人中有无认知障碍者的自我和代理听力评估准确性。
J Am Geriatr Soc. 2022 Feb;70(2):490-500. doi: 10.1111/jgs.17558. Epub 2021 Nov 23.
10
The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force.代理和代理报告措施的使用:国际生活质量研究学会(ISOQOL)代理工作组的报告。
Qual Life Res. 2022 Feb;31(2):317-327. doi: 10.1007/s11136-021-02937-8. Epub 2021 Jul 12.