Almosallam Abdulaziz, Qureshi Ahmad Zaheer, Alzahrani Bashayer, AlSultan Sultanh, Alzubaidi Waad Ibrahim, Alsanad Alanoud
Department of Internal Medicine, Majmaah University, Majmaah 11952, Saudi Arabia.
Department of Physical Medicine and Rehabilitation, King Fahad Medical City, Riyadh 11525, Saudi Arabia.
Healthcare (Basel). 2024 May 10;12(10):982. doi: 10.3390/healthcare12100982.
The care of children with cerebral palsy (CP) requires a complex system of care that is not only dependent on health care resources, but is also strongly influenced by social and cultural attributes. Hence, it is important to explore the understanding and practices of caregivers within a regional perspective. This study was conducted to investigate the knowledge, attitude, and behavior (KAB) of parents with children diagnosed with CP in Saudi Arabia. A cross sectional survey was conducted on the caregivers of children with CP admitted for inpatient rehabilitation between October 2023 to January 2024. A total of 216 caregivers participated in this survey. About 82.9% of caregivers were the mothers of CP children, half (50.5%) were ≤36 years old, 53.7% were highly educated, and 89.2% lived in urban areas. More than half of the participants (57.7%) owned their homes. Regarding children, spastic quadriplegia was the most common type (46.3% of cases). Overall, the participants recorded good values for all variables for KAB. The mean value for attitude was higher (2.67 ± 0.20) when compared to behavior (2.49 ± 0.36) and knowledge (2.46 ± 0.25). Participants who had children with spastic quadriplegia CP reported lower behavior scores than their peers. Strategies with a special emphasis on improving the behaviors of caregivers for children with quadriplegia need to be adapted. Similarly, the living situations of families need to be taken into consideration given its significant association with the attitude of caregivers. A considerable lack of knowledge in handling emergency situations by caregivers signifies a gap in care, which could have potentially life-threatening consequences.
脑瘫患儿的护理需要一个复杂的护理系统，该系统不仅依赖于医疗保健资源，还受到社会和文化属性的强烈影响。因此，从区域角度探索护理人员的理解和实践非常重要。本研究旨在调查沙特阿拉伯患有脑瘫的儿童家长的知识、态度和行为（KAB）。对2023年10月至2024年1月期间因住院康复而入院的脑瘫患儿的护理人员进行了横断面调查。共有216名护理人员参与了这项调查。约82.9%的护理人员是脑瘫患儿的母亲，一半（50.5%）年龄≤36岁，53.7%受过高等教育，89.2%居住在城市地区。超过一半的参与者（57.7%）拥有自己的住房。关于儿童，痉挛性四肢瘫是最常见的类型（占病例的46.3%）。总体而言，参与者在KAB的所有变量上都记录了良好的值。与行为（2.49±0.36）和知识（2.46±0.25）相比，态度的平均值更高（2.67±0.20）。患有痉挛性四肢瘫脑瘫患儿的参与者报告的行为得分低于同龄人。需要采取特别强调改善四肢瘫患儿护理人员行为的策略。同样，鉴于家庭生活状况与护理人员的态度有显著关联，需要加以考虑。护理人员在处理紧急情况方面知识严重不足，这表明护理存在差距，可能会产生潜在的危及生命的后果。
