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全球卫生信息学研究中公平且具代表性的学术伙伴关系的原则与实施策略

Principles and implementation strategies for equitable and representative academic partnerships in global health informatics research.

作者信息

Campbell Elizabeth, Bear Don't Walk Oliver J, Fraser Hamish, Gichoya Judy, Wagholikar Kavishwar B, Kanter Andrew S, Holl Felix, Craig Sansanee

机构信息

Department of Environmental Health and Engineering, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD 21205, United States.

Center for Outbreak Response Innovation, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD 21202, United States.

出版信息

J Am Med Inform Assoc. 2025 May 1;32(5):958-963. doi: 10.1093/jamia/ocaf015.

Abstract

OBJECTIVE

Developing equitable, sustainable informatics solutions is key to scalability and long-term success for projects in the global health informatics (GHI) domain. This paper presents key strategies for incorporating principles of health equity in the GHI project lifecycle.

MATERIALS AND METHODS

The American Medical Informatics Association (AMIA) GHI Working Group organized a collaborative workshop at the 2023 AMIA Annual Symposium that included the presentation of five case studies of how principles of health equity have been incorporated into projects situated in low-and-middle-income countries and with Indigenous communities in the U.S. and best practices for operationalizing these principles into other informatics projects.

RESULTS

We present five principles: (1) Inclusion and Participation in Ethical, Sustainable Collaborations; (2) Engaging Community-Based Participatory Research Approaches; (3) Stakeholder Engagement; (4) Scalability and Sustainability; (5) Representation in Knowledge Creation, along with strategies that informatics researchers may use to incorporate these principles into their work.

DISCUSSION

Presented case studies and subsequent focus groups yielded key concepts and strategies to promote health equity that may be operationalized across GHI projects.

CONCLUSION

Equitable, sustainable, and scalable GHI projects require intentional integration of community and stakeholder perspectives in project development, implementation, and knowledge creation processes.

摘要

目标

开发公平、可持续的信息学解决方案是全球健康信息学(GHI)领域项目实现可扩展性和长期成功的关键。本文介绍了在GHI项目生命周期中纳入健康公平原则的关键策略。

材料与方法

美国医学信息学协会(AMIA)GHI工作组在2023年AMIA年会上组织了一次协作研讨会,其中包括介绍五个案例研究,内容涉及健康公平原则如何被纳入低收入和中等收入国家以及美国原住民社区的项目,以及将这些原则应用于其他信息学项目的最佳实践。

结果

我们提出了五项原则:(1)纳入并参与符合伦理、可持续的合作;(2)采用基于社区的参与性研究方法;(3)利益相关者参与;(4)可扩展性和可持续性;(5)在知识创造中的代表性,以及信息学研究人员可用于将这些原则纳入其工作的策略。

讨论

所展示的案例研究及随后的焦点小组讨论产生了可在GHI项目中实施的促进健康公平的关键概念和策略。

结论

公平、可持续且可扩展的GHI项目需要在项目开发、实施和知识创造过程中有意识地整合社区和利益相关者的观点。

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