• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

患有慢性疾病儿童的学龄前兄弟姐妹的心理社会功能:一项范围综述。

Psychosocial Functioning for Preschool-Aged Siblings of Children With Chronic Disorders: A Scoping Review.

作者信息

Prentice Caitlin M, Fjermestad Krister, Haukeland Yngvild Bjartveit, Vatne Torun M

机构信息

Department of Psychology, University of Oslo, Oslo, Norway.

Frambu Competence Centre for Rare Disorders, Siggerud, Norway.

出版信息

Child Care Health Dev. 2025 Mar;51(2):e70039. doi: 10.1111/cch.70039.

DOI:10.1111/cch.70039
PMID:39967342
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11836548/
Abstract

BACKGROUND

School-aged siblings of children with chronic disorders, including somatic, neurodevelopmental and psychological diagnoses, are at a small but significant risk of experiencing psychosocial difficulties. It is unclear whether this is the case for such siblings when they are preschool age.

OBJECTIVE

This scoping review examined research describing psychosocial challenges and adaptation among preschool-aged children who have a sibling with a chronic disorder, and interventions aimed to serve this population.

DESIGN

We searched online databases for peer-reviewed studies published between 1998 and 2024 and identified 18 studies that reported psychosocial functioning such as psychological states, mental health variables and descriptions of experiences for 3- to 6-year-olds who were siblings of children with a neurodevelopmental disorder, somatic illness, mental illness or rare genetic disorder.

RESULTS

Of the 18 studies included, 15 were related to siblings of autistic children, and 12 of these aimed to study the development of autism in infants. Only two intervention studies were identified, and these had very small samples with maximum three participants in the 3- to 6-year-old age range.

CONCLUSIONS

Results across the included studies suggest that preschool-aged siblings may be at an increased risk of psychosocial difficulties, but it was difficult to draw definitive conclusions due to the large proportion of included studies related to the development of autism and the heterogeneity of study types represented. Future research should focus on the psychosocial functioning of preschool-aged siblings and target preschool-aged siblings of children with chronic disorders beyond autism.

摘要

背景

患有慢性疾病(包括躯体疾病、神经发育障碍和心理疾病)儿童的学龄期兄弟姐妹面临着虽小但显著的心理社会困难风险。目前尚不清楚这种情况在这些兄弟姐妹处于学龄前时是否同样存在。

目的

本综述研究了描述患有慢性疾病的兄弟姐妹的学龄前儿童所面临的心理社会挑战和适应情况的研究,以及旨在服务这一人群的干预措施。

设计

我们在在线数据库中搜索了1998年至2024年间发表的同行评审研究,确定了18项研究,这些研究报告了患有神经发育障碍、躯体疾病、精神疾病或罕见遗传疾病的儿童的3至6岁兄弟姐妹的心理社会功能,如心理状态、心理健康变量和经历描述。

结果

在纳入的18项研究中,15项与自闭症儿童的兄弟姐妹有关,其中12项旨在研究婴儿自闭症的发展。仅确定了两项干预研究,且这些研究样本量非常小,3至6岁年龄组最多有三名参与者。

结论

纳入研究的结果表明,学龄前兄弟姐妹可能面临更高的心理社会困难风险,但由于纳入研究中很大一部分与自闭症发展相关,且研究类型具有异质性,因此难以得出明确结论。未来的研究应关注学龄前兄弟姐妹的心理社会功能,并针对自闭症以外患有慢性疾病儿童的学龄前兄弟姐妹。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/70d2/11836548/4bd7741fe524/CCH-51-e70039-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/70d2/11836548/4bd7741fe524/CCH-51-e70039-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/70d2/11836548/4bd7741fe524/CCH-51-e70039-g001.jpg

相似文献

1
Psychosocial Functioning for Preschool-Aged Siblings of Children With Chronic Disorders: A Scoping Review.患有慢性疾病儿童的学龄前兄弟姐妹的心理社会功能:一项范围综述。
Child Care Health Dev. 2025 Mar;51(2):e70039. doi: 10.1111/cch.70039.
2
School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review.慢性病患儿兄弟姐妹的学校经历:一项系统文献综述
J Pediatr Nurs. 2017 Mar-Apr;33:23-32. doi: 10.1016/j.pedn.2016.11.007. Epub 2016 Dec 13.
3
Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning.青少年慢性病患者的兄弟姐妹:照顾责任和心理社会功能。
J Child Health Care. 2022 Dec;26(4):581-596. doi: 10.1177/13674935211033466. Epub 2021 Jul 16.
4
The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment.普拉德-威利综合征对家庭生活质量和照护的影响,以及未受影响的兄弟姐妹的社会心理调整。
J Intellect Disabil Res. 2013 Sep;57(9):861-73. doi: 10.1111/j.1365-2788.2012.01634.x. Epub 2012 Oct 12.
5
Siblings of children with a chronic illness: a meta-analysis.慢性病患儿的兄弟姐妹:一项荟萃分析。
J Pediatr Psychol. 2002 Dec;27(8):699-710. doi: 10.1093/jpepsy/27.8.699.
6
The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review.应用人口数据关联来获取神经发育障碍儿童和青年的同胞健康结局:一项范围综述。
Int J Popul Data Sci. 2025 Mar 18;10(1):2413. doi: 10.23889/ijpds.v10i1.2413. eCollection 2025.
7
Psychological Adjustment of Siblings of Children with Autism Spectrum Disorder in Hong Kong.香港自闭症谱系障碍儿童兄弟姐妹的心理调适
East Asian Arch Psychiatry. 2016 Dec;26(4):141-7.
8
A systematic review of social support for siblings of children with neurodevelopmental disorders.对儿童神经发育障碍患者兄弟姐妹的社会支持的系统评价。
Res Dev Disabil. 2022 Jul;126:104234. doi: 10.1016/j.ridd.2022.104234. Epub 2022 Apr 22.
9
Multi-informant assessment of siblings of youth with autism spectrum disorder: Parent-child discrepancies in at-risk classification.多信息源评估自闭症谱系障碍青少年的兄弟姐妹:高危分类中的亲子差异。
Res Dev Disabil. 2017 Sep;68:78-87. doi: 10.1016/j.ridd.2017.07.012. Epub 2017 Jul 22.
10
Risk of Psychiatric and Neurodevelopmental Disorders Among Siblings of Probands With Autism Spectrum Disorders.自闭症谱系障碍患者的兄弟姐妹患精神和神经发育障碍的风险。
JAMA Psychiatry. 2016 Jun 1;73(6):622-9. doi: 10.1001/jamapsychiatry.2016.0495.

本文引用的文献

1
Psychological adjustment of siblings of children with Prader-Willi syndrome.普拉德-威利综合征患儿兄弟姐妹的心理调适
J Intellect Dev Disabil. 2023 Jun;48(2):196-205. doi: 10.3109/13668250.2022.2132630. Epub 2022 Nov 2.
2
The experiences and perceptions of healthy siblings of children with a long-term condition: Umbrella review.患有长期疾病儿童的健康兄弟姐妹的经历和看法:伞式综述。
J Pediatr Nurs. 2024 Jul-Aug;77:191-203. doi: 10.1016/j.pedn.2024.03.022. Epub 2024 Apr 4.
3
Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study.
先天性心脏病患儿和青少年的心理健康状况:一项基于丹麦人群的队列研究。
Circulation. 2023 Oct 31;148(18):1381-1394. doi: 10.1161/CIRCULATIONAHA.123.064705. Epub 2023 Sep 18.
4
Associations between early language, motor abilities, and later autism traits in infants with typical and elevated likelihood of autism.在具有典型和高自闭症可能性的婴儿中,早期语言、运动能力与后期自闭症特征之间的关联。
Autism Res. 2023 Nov;16(11):2184-2197. doi: 10.1002/aur.3023. Epub 2023 Sep 12.
5
Autism Spectrum Disorder: A Review.自闭症谱系障碍:综述
JAMA. 2023 Jan 10;329(2):157-168. doi: 10.1001/jama.2022.23661.
6
Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation.全球范围内讲英语人群的自闭症相关语言偏好:一项混合方法研究。
Autism Res. 2023 Feb;16(2):406-428. doi: 10.1002/aur.2864. Epub 2022 Dec 6.
7
Children with a rare congenital genetic disorder: a systematic review of parent experiences.罕见先天性遗传疾病患儿的父母体验的系统评价
Orphanet J Rare Dis. 2022 Oct 17;17(1):375. doi: 10.1186/s13023-022-02525-0.
8
Psychosocial Interventions and Support Groups for Siblings of Individuals with Neurodevelopmental Conditions: A Mixed Methods Systematic Review of Sibling Self-reported Mental Health and Wellbeing Outcomes.神经发育障碍患者的兄弟姐妹的心理社会干预和支持小组:对兄弟姐妹自我报告的心理健康和幸福感结果进行的混合方法系统评价。
Clin Child Fam Psychol Rev. 2023 Mar;26(1):143-189. doi: 10.1007/s10567-022-00413-4. Epub 2022 Sep 30.
9
'Autistic person' or 'person with autism'? Person-first language preference in Dutch adults with autism and parents.“自闭症患者”还是“孤独症人士”?荷兰孤独症成人及其家长对“以人为主”语言的偏好。
Autism. 2023 Apr;27(3):788-795. doi: 10.1177/13623613221117914. Epub 2022 Aug 11.
10
Behavior Problems, Self-Esteem, and Prosocial Behavior in Siblings of Children With Chronic Physical Health Conditions: An Updated Meta-Analysis.患有慢性身体健康状况儿童的兄弟姐妹的行为问题、自尊和亲社会行为:一项更新的荟萃分析。
J Pediatr Psychol. 2023 Jan 12;48(1):77-90. doi: 10.1093/jpepsy/jsac066.