School of Clinical Sciences, Auckland University of Technology, AUT 90 Akoranga Drive, Northcote, Auckland 0627, New Zealand.
School of Clinical Sciences, Auckland University of Technology, AUT 90 Akoranga Drive, Northcote, Auckland 0627, New Zealand; Edith Cowan University, 270 Joondalup Dr, Joondalup, WA 6027, Australia.
J Pediatr Nurs. 2024 Jul-Aug;77:191-203. doi: 10.1016/j.pedn.2024.03.022. Epub 2024 Apr 4.
The lives of healthy siblings living with a sibling with a long- term condition are often shaped by the family, type of illness, length of illness, age of the child, caregiver demands, and support provided to the family, ill sibling, and healthy sibling. While the experiences of healthy siblings are documented in the literature by parent proxy, literature on healthy siblings self-reported experiences of living with a sibling who has a long-term condition remains scarce.
This umbrella review aims to synthesize reviews on the self-reported experiences of healthy siblings of children living with a sibling who has a long-term condition.
Published peer-reviewed reviews in English language exploring the self-reported experiences of healthy siblings under 24 years old, whose siblings are diagnosed with a long-term condition.
Using a developed search strategy, seven electronic databases (CINAHLPlus, Scopus, PubMed, PsycINFO, Cochrane Database of Systematic Reviews, Clinical Key, and Google Scholar) were searched from 2018 till December 2023. Eleven reviews met the inclusion criteria and were subjected to narrative synthesis.
Four themes (adjusting to changes, wanting to help, living the ups and downs, living the changes), and eight subthemes were generated from the syntheses.
This is the first umbrella review undertaken on healthy siblings self-reported experiences of living with a sibling who has a long-term condition. The impact of a long-term condition on healthy siblings of children with a long-term condition suggests a need for healthcare providers and organisations to provide better emotional, psychological, and informational support to healthy siblings and their families.
Findings from this review will inform healthcare providers, organisations, researchers, and policymakers on the development of future clinical practices and research for healthy siblings.
健康的兄弟姐妹与长期患病的兄弟姐妹一起生活，他们的生活往往受到家庭、疾病类型、患病时间长短、孩子年龄、照顾者需求以及家庭、患病兄弟姐妹和健康兄弟姐妹所获得的支持等因素的影响。尽管健康兄弟姐妹的经历在文献中由父母代表记录，但关于与长期患病的兄弟姐妹一起生活的健康兄弟姐妹自我报告经历的文献仍然很少。
本综述旨在综合关于与患有长期疾病的兄弟姐妹一起生活的健康兄弟姐妹自我报告经历的综述。
发表的同行评议综述，以英语撰写，探讨年龄在 24 岁以下、其兄弟姐妹被诊断患有长期疾病的健康兄弟姐妹的自我报告经历。
使用已制定的搜索策略，从 2018 年到 2023 年 12 月，在七个电子数据库（CINAHLPlus、Scopus、PubMed、PsycINFO、Cochrane 系统评价数据库、Clinical Key 和 Google Scholar）中进行了搜索。符合纳入标准的 11 项综述进行了叙述性综合分析。
从综合分析中产生了四个主题（适应变化、想要帮助、经历起伏、经历变化）和八个子主题。
这是第一项关于与患有长期疾病的兄弟姐妹一起生活的健康兄弟姐妹自我报告经历的综述。长期疾病对儿童长期患病的健康兄弟姐妹的影响表明，医疗保健提供者和组织需要为健康的兄弟姐妹及其家庭提供更好的情感、心理和信息支持。
本综述的结果将为医疗保健提供者、组织、研究人员和政策制定者提供有关未来为健康兄弟姐妹制定临床实践和研究的信息。
