Nagpal Meghan, Jalali Niloofar, Sherifali Diana, Morita Plinio, Cafazzo Joseph A
Institute of Health Policy, Management, & Evaluation, Dalla Lana School of Public Health, University of Toronto, Health Sciences Building, 4th Floor, Toronto, ON, M5T 3M6, Canada, 1 416 978 4326, 1 416 978 7350.
Centre for Digital Therapeutics, Techna Institute, University Health Network, Toronto, ON, Canada.
JMIR Form Res. 2025 Feb 21;9:e51154. doi: 10.2196/51154.
Type 2 diabetes (T2D) is a chronic disease that can be partially managed through healthy behaviors. However, the COVID-19 pandemic impacted how people managed T2D due to work and school closures and social isolation. Moreover, individuals with T2D were at increased risk of complications from COVID-19 and experienced worsened mental health due to stress and anxiety.
This study aims to synthesize emerging themes related to the health behaviors of people living with T2D, and how they were affected during the early stages of the COVID-19 pandemic by examining Reddit forums dedicated to people living with T2D.
Data from Reddit forums related to T2D, from January 2018 to early March 2021, were downloaded using the Pushshift API; support vector machines were used to classify whether a post was made in the context of the pandemic. Latent Dirichlet allocation topic modelling was performed to identify topics of discussion across the entire dataset and a subsequent iteration was performed to identify topics specific to the COVID-19 pandemic. Sentiment analysis using the VADER (Valence Aware Dictionary for Sentiment Reasoning) algorithm was performed to assess attitudes towards the pandemic.
From all posts, the identified topics of discussion were classified into the following themes: managing lifestyle (sentiment score 0.25, 95% CI 0.25-0.26), managing blood glucose (sentiment score 0.19, 95% CI 0.18-0.19), obtaining diabetes care (sentiment score 0.19, 95% CI 0.18-0.20), and coping and receiving support (sentiment score 0.34, 95% CI 0.33-0.35). Among the COVID-19-specific posts, the topics of discussion were coping with poor mental health (sentiment score 0.04, 95% CI -0.01 to0.11), accessing doctor and medications and controlling blood glucose (sentiment score 0.14, 95% CI 0.09-0.20), changing food habits during the pandemic (sentiment score 0.25, 95% CI 0.20-0.31), impact of stress on blood glucose levels (sentiment score 0.03, 95% CI -0.03 to 0.08), changing status of employment and insurance (sentiment score 0.17, 95% CI 0.13-0.22), and risk of COVID-19 complications (sentiment score 0.09, 95% CI 0.03-0.14). Overall, posts classified as COVID-19-related (0.12, 95% CI 0.01-0.15) were associated with a lower sentiment score than those classified as nonCOVID (0.25, 95% CI 0.24-0.25). This study was limited due to the lack of a method for assessing the demographics of users and verifying whether users had T2D.
Themes identified from Reddit data suggested that the COVID-19 pandemic significantly influenced how people with T2D managed their disease, particularly in terms of accessing care and dealing with the complications of the virus. Overall, the early stages of the pandemic negatively impacted the attitudes of people living with T2D. This study demonstrates that social media data can be a qualitative data source for understanding patient perspectives.
2型糖尿病(T2D)是一种慢性病,可通过健康行为进行部分管理。然而,由于工作和学校关闭以及社会隔离,新冠疫情影响了人们管理T2D的方式。此外,T2D患者感染新冠病毒后出现并发症的风险增加,且由于压力和焦虑,其心理健康状况恶化。
本研究旨在通过研究Reddit上专门针对T2D患者的论坛,综合与T2D患者健康行为相关的新出现的主题,以及他们在新冠疫情早期阶段是如何受到影响的。
使用Pushshift API下载2018年1月至2021年3月初Reddit上与T2D相关论坛的数据;使用支持向量机对帖子是否在疫情背景下发布进行分类。进行潜在狄利克雷分配主题建模以识别整个数据集中的讨论主题,并进行后续迭代以识别特定于新冠疫情的主题。使用VADER(用于情感推理的价态感知词典)算法进行情感分析,以评估对疫情的态度。
从所有帖子中,识别出的讨论主题分为以下几类:管理生活方式(情感得分0.25,95%置信区间0.25 - 0.26)、管理血糖(情感得分0.19,95%置信区间0.18 - 0.19)、获得糖尿病护理(情感得分0.19,95%置信区间0.18 - 0.20)以及应对和获得支持(情感得分0.34,95%置信区间0.33 - 0.35)。在与新冠疫情相关的特定帖子中,讨论主题包括应对不良心理健康(情感得分0.04,95%置信区间 - 0.01至0.11)、看医生和获取药物以及控制血糖(情感得分0.14,95%置信区间0.09 - 0.20)、疫情期间改变饮食习惯(情感得分0.25,95%置信区间0.20 - 0.31)、压力对血糖水平的影响(情感得分0.03,95%置信区间 - 0.03至0.08)、就业和保险状况的变化(情感得分0.17,95%置信区间0.13 - 0.22)以及新冠病毒并发症的风险(情感得分0.09,95%置信区间0.03 - 0.14)。总体而言,被归类为与新冠疫情相关的帖子(0.12,95%置信区间0.01 - 0.15)的情感得分低于被归类为非新冠相关的帖子(0.25,95%置信区间0.24 - 0.25)。由于缺乏评估用户人口统计学特征和核实用户是否患有T2D的方法,本研究存在局限性。
从Reddit数据中识别出的主题表明,新冠疫情显著影响了T2D患者管理疾病的方式,特别是在获得护理和应对病毒并发症方面。总体而言,疫情早期对T2D患者的态度产生了负面影响。本研究表明社交媒体数据可以成为了解患者观点的定性数据来源。