Dibao-Dina Clarisse, Nasri Lydia, Dagot Céline, Fouquet Jean-Philippe, Rideau Sophie, Dumas Vincent, Neff Guillaume, Payen Véronique, Rube-Millon Delphine, Lemaile Marie, Nkodo Jacques-Alexis, Camus Vincent, Fougère Bertrand, Giraudeau Bruno, Beauchamp Dominique, Fruchard-Foucault Laura, Renoux Cécile, Robert Jean
Department of General Practice, Département Universitaire de Médecine Générale, Faculté de Médecine, University of Tours, 10 Boulevard Tonnellé cedex 1, B.P. 3223, Tours, France.
University of Tours, University of Nantes, INSERM, SPHERE U1246, Tours, France.
BMC Prim Care. 2025 Feb 21;26(1):48. doi: 10.1186/s12875-025-02724-1.
Many available interventions to reduce challenges of natural caregivers of people living with dementia have limited efficacy since they do not meet the caregiver's individual needs. This study aims to evaluate caregivers' needs with the future goal of developing a tailored, multicomponent intervention to ease caregiver challenges through appropriate caregiver-centred interventions.
Mixed method study using a convergent design with quantitative and qualitative data collection and analysis performed at similar times. For the cross-sectional quantitative study, questionnaires were sent to natural adult caregivers of a person with dementia identified by local healthcare professionals and general practitioners exercising in a rural and an urban department. For the qualitative descriptive study, individual caregiver interviews and healthcare professional focus groups were conducted in two primary healthcare territories in both departments. Data about screening for caregiver challenges and any help provided to the caregiver were collected. Quantitative data were analysed using descriptive statistics and qualitative data underwent thematic analysis using the grounded theory approach. Quantitative and qualitative results were described using a narrative discussion approach, then results were combined on a theme-by-theme basis using the weaving approach enabling integrated analysis.
A total of 199 general practitioners and 67 caregivers participated in the quantitative study. In the qualitative study, 10 caregivers from the urban area and 12 caregivers from the rural area participated in the individual interviews, and 9 healthcare professionals participated in the focus groups. Our broad categories of caregiver needs were identified: awareness and early diagnosis, information and training, practical, coordinated support, and psychological support. The integrated analysis highlighted areas for improvement in meeting these needs, especially a better identification of the caregiver role, caregiver distress, better information about what the caregiver has to expect in terms of the disease's progression and daily management, ways to improve awareness in general population, acceptation of practical support and its coordination and adaptation.
Identified needs were concordant with those in the literature. The mixed method used enabled expectations to be explored by analysing together the points of view of both patients and healthcare professionals in order to identify ways of improving their care.
Not applicable.
许多现有的旨在减轻痴呆症患者自然照护者所面临挑战的干预措施效果有限，因为它们无法满足照护者的个体需求。本研究旨在评估照护者的需求，最终目标是制定一项量身定制的多组分干预措施，通过适当的以照护者为中心的干预来缓解照护者面临的挑战。
采用混合方法研究，采用收敛设计，在相似时间进行定量和定性数据的收集与分析。对于横断面定量研究，向当地医疗专业人员和在农村及城市科室执业的全科医生所确定的痴呆症患者的成年自然照护者发送问卷。对于定性描述性研究，在两个科室的两个初级医疗区域进行了个体照护者访谈和医疗专业人员焦点小组讨论。收集了有关筛查照护者挑战以及向照护者提供的任何帮助的数据。定量数据采用描述性统计进行分析，定性数据采用扎根理论方法进行主题分析。定量和定性结果采用叙述性讨论方法进行描述，然后使用交织方法按主题逐一合并结果，实现综合分析。
共有199名全科医生和67名照护者参与了定量研究。在定性研究中，来自城市地区的10名照护者和来自农村地区的12名照护者参与了个体访谈，9名医疗专业人员参与了焦点小组讨论。我们确定了照护者需求的大致类别：意识与早期诊断、信息与培训、实际的、协调的支持以及心理支持。综合分析突出了在满足这些需求方面有待改进的领域，特别是更好地明确照护者角色、照护者痛苦、关于疾病进展和日常管理方面照护者预期的更好信息、提高普通人群意识的方法、接受实际支持及其协调与调整。
所确定的需求与文献中的需求一致。所采用的混合方法能够通过共同分析患者和医疗专业人员的观点来探索期望，以便确定改善他们护理的方法。
不适用。
