“首先，我没有被当成傻瓜对待。”——痴呆症患者对友善对待痴呆症患者的医院的看法。

'Firstly, I'm not treated like a fool.'-the perspective of people with dementia on a dementia-friendly hospital.

作者信息

Manietta Christina, Rommerskirch-Manietta Mike, Purwins Daniel, Knecht Christiane, Roes Martina

机构信息

German Center for Neurodegenerative Diseases (DZNE), Stockumer Str. 12, Witten 58453, Germany.

Witten/Herdecke University, Faculty of Health, School of Nursing Science, Witten, Germany.

出版信息

Age Ageing. 2025 Mar 3;54(3). doi: 10.1093/ageing/afaf048.

DOI:10.1093/ageing/afaf048

PMID:40037560

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11879342/

Abstract

BACKGROUND

Dementia-friendly hospitals are increasingly discussed in healthcare, politics, research and society as a way to improve hospital stays for people with dementia. However, the perspective of people with dementia is often underrepresented, and current definitions and concepts are primarily based on the expertise of healthcare professionals.

OBJECTIVES

To identify characteristics of a dementia-friendly hospital from the perspective of people with dementia.

METHODS

A qualitative design embedded in a case study was used. We conducted 15 semi-structured interviews with people with dementia during their hospital stay. The interviews were analysed using reflexive thematic analysis with an inductive approach. In our study, we adopted a participatory approach and actively involved people with dementia and other stakeholders in the development of the interview guide and in the data analysis.

RESULTS

The participants expect more than what's necessary from a dementia-friendly hospital, as presented by eight characteristics identified: (i) The most important thing is how we treat each other; (ii) Someone cares about ME; (iii) No hully gully! I want professional care; (iv) Focusing on my goals; (v) LOOK! I've still got capabilities; (vi) Skipping Groundhog Day; (vii) A bit of both: mingle and single, and (viii) Recognising what relatives mean to me.

CONCLUSION

Our results highlight the importance of involving people with dementia in the development of dementia-friendly hospitals as only they have the lived experience and a different perspective from that of healthcare professionals.

摘要

背景

作为改善痴呆症患者住院体验的一种方式，对痴呆症患者友好的医院在医疗保健、政治、研究和社会领域受到越来越多的讨论。然而，痴呆症患者的观点往往未得到充分体现，当前的定义和概念主要基于医疗保健专业人员的专业知识。

目的

从痴呆症患者的角度确定对痴呆症患者友好的医院的特征。

方法

采用嵌入案例研究的定性设计。我们在痴呆症患者住院期间对他们进行了15次半结构化访谈。采用反思性主题分析的归纳方法对访谈进行分析。在我们的研究中，我们采用了参与式方法，积极让痴呆症患者和其他利益相关者参与访谈指南的制定和数据分析。

结果

参与者对痴呆症友好型医院的期望超出了必要的范畴，具体表现为所确定的八个特征：（i）最重要的是我们如何对待彼此；（ii）有人关心我；（iii）不要混乱无序！我需要专业护理；（iv）关注我的目标；（v）看！我仍然有能力；（vi）避免重复单调的日子；（vii）两者兼顾：既能融入又能独处，以及（viii）认识到亲属对我的意义。