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了解参加康复学院的家人、朋友和护理人员的经历:焦点小组研究。

Understanding the experiences of family, friends and carers attending Recovery Colleges: focus group study.

作者信息

Bowness Bryher, Bicknell Sarah, Samuels Lana, Osman Yasma, Kellermann Vanessa, Henderson Claire, Lawrence Vanessa

机构信息

Department of Health Service & Population Research, Institute of Psychiatry Psychology & Neuroscience, King's College, London, UK.

South London and Maudsley NHS Foundation Trust, London, UK.

出版信息

BJPsych Open. 2025 Mar 11;11(2):e43. doi: 10.1192/bjo.2024.852.

DOI:10.1192/bjo.2024.852
PMID:40066781
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12001944/
Abstract

BACKGROUND

Family and friends (family carers) provide substantial support to those with mental ill health, often affecting their own well-being. Subsequently, family carers have their own recovery journeys. Research highlights numerous benefits of attending Recovery Colleges, but whether these apply for family carers remains unexplored.

AIMS

We aimed to explore family carers' experiences of attending Recovery Colleges across England, to understand current provision and how this might better include and support family carers.

METHOD

Together with lived experience researchers, this qualitative focus group study used collaborative thematic analysis of online focus groups and interviews with family carers and Recovery College staff from across England.

RESULTS

We generated six superordinate themes: 'The "carer" identity is not clearcut', 'Recovery ethos applies to family carers too', 'Power of lived experience', 'Educational focus is appealing', 'Family carers deserve recognition and provision' and 'Reaching out and fitting around family carers'. Attending Recovery Colleges developed family carers understandings and gave them skills to navigate services and support themselves and others, which furthered their own recovery journeys. Shared learning spaces were helpful, but participants felt these were not always oriented to include family carers. Our findings revealed ways Recovery Colleges could increase their relevance and accessibility to family carers.

CONCLUSIONS

The unique characteristics of Recovery Colleges suited the recovery needs of family carers. However, more resources are needed to develop this potential and reach more family carers. Family carer co-researchers enriched our findings, and discussions with the Recovery College community furthered our recommendations for practice.

摘要

背景

家人和朋友(家庭照顾者)为患有精神疾病的人提供了大量支持,这往往会影响他们自身的幸福感。随后,家庭照顾者也有自己的康复历程。研究强调了参加康复学院的诸多益处,但这些益处是否适用于家庭照顾者仍未得到探讨。

目的

我们旨在探究全英格兰家庭照顾者参加康复学院的经历,以了解当前的服务提供情况以及如何能更好地纳入并支持家庭照顾者。

方法

本定性焦点小组研究与有实际经验的研究人员合作,对来自全英格兰的家庭照顾者和康复学院工作人员进行了在线焦点小组访谈,并采用协作主题分析法。

结果

我们得出了六个上位主题:“‘照顾者’身份并不明确”、“康复理念也适用于家庭照顾者”、“实际经验的力量”、“教育重点具有吸引力”、“家庭照顾者应得到认可和服务提供”以及“主动联系并配合家庭照顾者”。参加康复学院增进了家庭照顾者的理解,并赋予他们应对服务以及自我支持和支持他人的技能,这推动了他们自身的康复进程。共享学习空间很有帮助,但参与者觉得这些空间并不总是以纳入家庭照顾者为导向。我们的研究结果揭示了康复学院可以提高与家庭照顾者的相关性和可及性的方法。

结论

康复学院的独特特点适合家庭照顾者的康复需求。然而,需要更多资源来开发这一潜力并惠及更多家庭照顾者。家庭照顾者共同研究者丰富了我们的研究结果,与康复学院社区的讨论进一步完善了我们的实践建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7b43/12001944/b0fe350f518f/S2056472424008524_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7b43/12001944/b0fe350f518f/S2056472424008524_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7b43/12001944/b0fe350f518f/S2056472424008524_fig1.jpg

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本文引用的文献

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Lancet Psychiatry. 2023 Oct;10(10):768-779. doi: 10.1016/S2215-0366(23)00229-8. Epub 2023 Sep 19.
2
Family members' perspectives of hope when supporting a relative experiencing mental health problems.家庭成员在支持有心理健康问题的亲属时的希望视角。
Int J Ment Health Nurs. 2023 Oct;32(5):1405-1415. doi: 10.1111/inm.13185. Epub 2023 Jun 18.
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Who uses recovery colleges? Casemix analysis of sociodemographic and clinical characteristics and representativeness of recovery college students.
谁使用康复学院?社会人口学和临床特征的病例组合分析以及康复学院学生的代表性。
Psychiatr Rehabil J. 2023 Sep;46(3):211-215. doi: 10.1037/prj0000532. Epub 2023 Mar 30.
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Evidence-based Recovery Colleges: developing a typology based on organisational characteristics, fidelity and funding.循证康复学院:基于组织特征、保真度和资金发展一种分类法。
Soc Psychiatry Psychiatr Epidemiol. 2024 May;59(5):759-768. doi: 10.1007/s00127-023-02452-w. Epub 2023 Mar 11.
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Effectiveness of family psychoeducation for major depressive disorder: systematic review and meta-analysis.家庭心理教育对重度抑郁症的有效性:系统评价与荟萃分析。
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Participatory research in health promotion: a critical review and illustration of rationales.参与式健康促进研究:批判性回顾与理性阐释
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Outcomes and change processes of an established family education program for carers of adults diagnosed with a serious mental health condition.既定的针对成年严重精神健康问题患者照护者的家庭教育计划的结果和变化过程。
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Socioeconomic Status and Racial or Ethnic Differences in Participation: Web-Based Survey.参与度方面的社会经济地位及种族或民族差异:基于网络的调查
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