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谁来决定谁先接受治疗?在微观医疗资源分配决策中认真对待民主。

Who decides who goes first? Taking democracy seriously in micro-allocative healthcare decisions.

作者信息

Battisti Davide, Mannelli Chiara

机构信息

Department of Law, University of Bergamo, Via Gianbattista Moroni, 255, 24127, Bergamo, BG, Italy.

Istituto Superiore di Sanità, Bioethics Unit, Via Giano Della Bella, 34, 00162, Rome, Italy.

出版信息

Med Health Care Philos. 2025 Jun;28(2):327-337. doi: 10.1007/s11019-025-10263-w. Epub 2025 Mar 15.

DOI:10.1007/s11019-025-10263-w
PMID:40089616
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12103312/
Abstract

The structural scarcity of healthcare resources has deeply challenged their fair distribution, prompting the need for allocation criteria. Long under the spotlight of the bioethical debate with an extraordinary peak during the recent COVID-19 pandemic, micro-allocation of healthcare has been extensively discussed in the literature with regard to issues of substantive and formal justice. This paper addresses a relatively underdiscussed question within the field of formal justice: who should define micro-allocation criteria in healthcare? To explore this issue, we first establish formal requirements that must be met for allocation criteria to be considered fair and legitimate. Then, we introduce three possible answers to the research question: the attending physician, the team of physicians, and the team of experts. We discuss and then reject all of them, arguing that the task of defining allocation criteria should be assigned to a political representative, supported by a cross-disciplinary team of experts. This proposal is based on the need to take democracy seriously as a tool for making substantive allocative decisions in light of the inevitable disagreement on such matters within a community. To support this claim, we present two key arguments-the democracy argument and the consistency argument. We also pre-emptively respond to two significant critiques: the too-specificity of the decision critique and the catastrophic outcomes critique. In conclusion, we argue that our proposal offers the fairest and most legitimate decision-making process for healthcare micro-allocation.

摘要

医疗资源的结构性稀缺对其公平分配提出了严峻挑战,这促使人们需要制定分配标准。长期以来,医疗资源的微观分配一直处于生命伦理辩论的聚光灯下,在最近的新冠疫情期间更是达到了顶峰,关于实质正义和形式正义问题,该领域的文献已经进行了广泛讨论。本文探讨了形式正义领域中一个相对较少被讨论的问题:谁应该在医疗保健中定义微观分配标准?为了探讨这个问题,我们首先确立了分配标准要被视为公平和合法必须满足的形式要求。然后,我们提出了对该研究问题的三种可能答案:主治医生、医生团队和专家团队。我们对所有这些答案进行了讨论,然后予以否定,认为定义分配标准的任务应该交给政治代表,并由跨学科专家团队提供支持。这一建议基于这样一种必要性,即鉴于社区内部在这些问题上不可避免地存在分歧,要将民主作为做出实质性分配决策的工具予以认真对待。为支持这一主张,我们提出了两个关键论点——民主论点和一致性论点。我们还预先回应了两种重要的批评意见:决策过于具体的批评和灾难性后果的批评。总之,我们认为我们的建议为医疗微观分配提供了最公平、最合法的决策过程。

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本文引用的文献

1
A proposal for formal fairness requirements in triage emergency departments: publicity, accessibility, relevance, standardisability and accountability.关于分诊急诊科正式公平性要求的提案:公开性、可及性、相关性、可标准化性和问责制。
J Med Ethics. 2023 Aug 24. doi: 10.1136/jme-2023-109188.
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The shared ethical framework to allocate scarce medical resources: a lesson from COVID-19.分配稀缺医疗资源的共享伦理框架:COVID-19 的教训。
Lancet. 2023 Jun 3;401(10391):1892-1902. doi: 10.1016/S0140-6736(23)00812-7. Epub 2023 May 9.
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Should responsibility be used as a tiebreaker in allocation of deceased donor organs for patients suffering from alcohol-related end-stage liver disease?在分配因酒精相关终末期肝病而患病的患者的已故供体器官时,是否应该使用责任作为打破平局的因素?
Med Health Care Philos. 2023 Jun;26(2):243-255. doi: 10.1007/s11019-023-10141-3. Epub 2023 Feb 13.
4
Covid-19 and age discrimination: benefit maximization, fairness, and justified age-based rationing.Covid-19 与年龄歧视:利益最大化、公平性和合理的基于年龄的配给。
Med Health Care Philos. 2023 Mar;26(1):3-11. doi: 10.1007/s11019-022-10118-8. Epub 2022 Oct 15.
5
Systemising triage: COVID-19 guidelines and their underlying theories of distributive justice.系统分诊:COVID-19 指南及其背后的分配正义理论。
Med Health Care Philos. 2022 Dec;25(4):703-714. doi: 10.1007/s11019-022-10101-3. Epub 2022 Jul 7.
6
The Reasonableness Standard for Conscientious Objection in Healthcare.医疗保健中凭良心拒诊的合理性标准。
J Bioeth Inq. 2022 Jun;19(2):255-264. doi: 10.1007/s11673-021-10165-5. Epub 2022 Feb 1.
7
Ethics of ICU triage during COVID-19.新冠疫情期间重症监护病房的分诊伦理
Br Med Bull. 2021 Jun 10;138(1):5-15. doi: 10.1093/bmb/ldab009.
8
Allocating scarce life-saving resources: the proper role of age.分配稀缺的救生资源:年龄的恰当作用。
J Med Ethics. 2021 Mar 22. doi: 10.1136/medethics-2020-106792.
9
Rationing in a Pandemic: Lessons from Italy.大流行中的资源分配:来自意大利的经验教训。
Asian Bioeth Rev. 2020 Jun 16;12(3):325-330. doi: 10.1007/s41649-020-00127-1. eCollection 2020 Sep.
10
Ethicists, doctors and triage decisions: who should decide? And on what basis?伦理学家、医生与分诊决策:该由谁来做决定?基于何种依据?
J Med Ethics. 2020 Jul 10. doi: 10.1136/medethics-2020-106499.