Kirk Kerkorian School of Medicine at UNLV, Las Vegas, Nevada, USA
Kirk Kerkorian School of Medicine at UNLV, Las Vegas, Nevada, USA.
BMJ Open. 2024 Nov 1;14(10):e083725. doi: 10.1136/bmjopen-2023-083725.
As the usage of online platforms becomes increasingly prevalent to share information, it is essential to garner a better understanding of the content disseminated across the internet. Studies have found that patients are relying on online resources to gather medical information, potentially encountering misinformation. The sharing of information concerning primary headaches, despite affecting a large portion of the world's population, has not been comprehensively analysed through the lens of online content. This scoping review seeks to explore the extent of available information, uncover existing gaps in knowledge, and to serve as a resource for healthcare providers to educate themselves to provide informed care to patients.
Studies considered for inclusion are those focused on primary headache (including migraines, tension headaches and cluster headaches) content posted on a community platform. Any online community forum will be eligible, including but not limited to TikTok, Twitter, Facebook, YouTube, Instagram, online forums and blogs. Studies will be limited to those published in English, with no geographic restriction. Five electronic databases, namely PubMed, Cochrane Library, Scopus, EMBASE, PsycInfo, will be searched for published reports. Two reviewers will independently screen titles and abstracts. The reviewers will then assess the full texts selected. In both cases, disagreements will be discussed with a third reviewer and consensus will be achieved. Data analysis will be descriptive with a narrative summary.
Since this is a scoping review of previously published summary data, ethical approval for this study is not needed. Findings will be published in a peer-reviewed journal.
This protocol is registered on the Open Science Framework Repository (https://doi.org/10.17605/OSF.IO/2MAFN).
随着在线平台的使用越来越普及，分享信息变得至关重要，因此我们必须更好地理解互联网上传播的内容。研究发现，患者正在依靠在线资源来获取医疗信息，这可能会导致他们接触到错误信息。尽管原发性头痛影响了世界上很大一部分人口，但针对原发性头痛的信息共享尚未通过在线内容的视角进行全面分析。本范围性综述旨在探讨现有信息的程度，揭示知识空白，并为医疗保健提供者提供资源，以便他们能够自我教育，为患者提供知情护理。
纳入的研究集中于原发性头痛（包括偏头痛、紧张性头痛和丛集性头痛）内容在社区平台上发布的内容。任何在线社区论坛都将符合条件，包括但不限于 TikTok、Twitter、Facebook、YouTube、Instagram、在线论坛和博客。研究将仅限于以英文发表的研究，无地理限制。将在五个电子数据库（即 PubMed、Cochrane 图书馆、Scopus、EMBASE、PsycInfo）中搜索已发表的报告。两名评审员将独立筛选标题和摘要。然后，评审员将评估选定的全文。在这两种情况下，分歧将与第三位评审员进行讨论，并达成共识。数据分析将采用描述性的叙述性总结。
由于这是对先前发表的总结数据的范围性综述，因此本研究不需要伦理批准。研究结果将发表在同行评议的期刊上。
本方案在开放科学框架资源库（https://doi.org/10.17605/OSF.IO/2MAFN）中注册。
