Wyborn Josephine, O'Donovan Mary-Ann, Gallego Gisselle
Centre for Disability Studies, The University of Sydney, Sydney, New South Wales, Australia
National Centre of Excellence in Intellectual Disability Health, University of New South Wales, Sydney, New South Wales, Australia.
BMJ Open. 2025 Mar 24;15(3):e094181. doi: 10.1136/bmjopen-2024-094181.
People with intellectual disability suffer from poorer health outcomes compared with the general population. Some of these inequalities are driven by systematic neglect of the healthcare system in responding to the needs of these people. This paper is a protocol for a mapping review that aims to systematically map the evidence base for the quality of healthcare for people with intellectual disability in Australia and similar universal health systems. It will use the Australian Health Performance Framework quality domains as a guide to define quality (effective, safe, appropriate, accessible, efficient/sustainable and continuity of care). The review aims to provide an overview of the existing evidence for quality in healthcare for people with intellectual disability, helping to steer future investments in improving the health and quality of life for people with intellectual disability.
A mapping review design has been chosen to address the broad aim and will be reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses-Scoping Reviews extension guidelines. Systematic searches of scientific databases and grey literature sources will be undertaken based on a search strategy developed in collaboration with academic librarians. Two reviewers will independently screen references against the inclusion/exclusion criteria. Visual/tabular summaries will then be produced alongside a descriptive overview. The mapping review has been registered with Open Science Framework (osf.io/7f8cy).
Formal ethical approval is not required as primary data will not be collected. This work is considered part of a larger stream of work by the National Centre of Excellence in Intellectual Disability and Health (NCoE) consisting of a consortium of expert organisations in intellectual disability and health. The NCoE will be engaged throughout the entirety of this review, including dissemination activities (presentations, reports, workshops and social media content).
与普通人群相比，智障人士的健康状况较差。这些不平等现象部分是由于医疗保健系统在应对这些人群需求方面的系统性忽视所致。本文是一项映射综述的方案，旨在系统地梳理澳大利亚及类似全民医疗系统中智障人士医疗保健质量的证据基础。它将以澳大利亚健康绩效框架质量领域为指导来界定质量（有效、安全、适当、可及、高效/可持续以及护理连续性）。该综述旨在概述智障人士医疗保健质量的现有证据，以帮助指导未来在改善智障人士健康和生活质量方面的投资。
已选择映射综述设计来实现这一广泛目标，并将根据系统评价和Meta分析扩展版的首选报告项目（PRISMA-ScR）指南进行报告。将根据与学术图书馆员合作制定的检索策略，对科学数据库和灰色文献来源进行系统检索。两名评审员将根据纳入/排除标准独立筛选参考文献。随后将制作可视化/表格总结以及描述性概述。该映射综述已在开放科学框架（osf.io/7f8cy）上注册。
由于不收集原始数据，因此无需正式伦理批准。这项工作被视为国家智障与健康卓越中心（NCoE）一系列更大工作的一部分，该中心由智障与健康领域的专家组织联盟组成。NCoE将参与本次综述的全过程，包括传播活动（演讲、报告、研讨会和社交媒体内容）。
