School of Psychological Science, The University of Western Australia, Perth, Western Australia, Australia.
The Kids Research Institute Australia, The University of Western Australia, Perth, Western Australia, Australia.
BMJ Open. 2024 Nov 24;14(11):e088509. doi: 10.1136/bmjopen-2024-088509.
People with intellectual disability are at risk of poor physical and mental health. Risks to health are compounded by poor health literacy, that is, reduced capacity to access health services, respond quickly to changes in health status and navigate care pathways. Building health literacy skills is a strength-based way to increase health and optimise the use of healthcare services. The internet is a primary source of health information for many people, including people with intellectual disability and their families. This scoping review will aim to identify and collate online lay healthcare resources available to and developed for people with intellectual disability and their families and evaluate whether domains of health literacy are addressed.
This review will be reported following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews guidelines. The proposed search strategy has three components. Resources will be identified by (1) reviewing disability organisation websites, (2) searching key disability and health terms in the Google search engine and (3) snowball sampling to identify additional resources through links in identified websites and resources. Resources will be selected if they are freely available, presented in or translatable into English, provide health information and are directed to people with intellectual disability or their family members. Extracted data will include descriptors of the source, format, area of health and targeted age range. Content relevant to domains of health literacy will be documented and gaps in available health information will be identified. Study findings will be presented in narrative, tabular and visual forms.
Ethical approval will not be sought because primary data will not be collected. The results will be disseminated in peer-reviewed literature, as conference presentations, as a synthesised resource for people with intellectual disability and their families and in summary documents for health service managers and policymakers.
智障人士的身心健康存在风险。健康素养低下（即获取医疗服务的能力降低、无法快速应对健康状况的变化以及无法驾驭医疗路径）进一步增加了他们的健康风险。提升健康素养是增强健康水平和优化医疗服务利用的一种基于优势的方法。互联网是许多人获取健康信息的主要来源，包括智障人士及其家属。本范围综述旨在确定和整理可供智障人士及其家属使用和开发的在线基础医疗资源，并评估健康素养的各个领域是否得到了涉及。
本综述将按照系统评价和荟萃分析扩展范围综述的首选报告项目进行报告。拟议的搜索策略有三个组成部分。资源将通过以下方式确定：（1）审查残疾组织网站；（2）在谷歌搜索引擎中搜索关键残疾和健康术语；（3）通过链接在已确定的网站和资源中识别出更多资源进行滚雪球抽样。如果资源是免费提供的、以英语呈现或可翻译成英语、提供健康信息并针对智障人士或其家庭成员，则将其选择出来。提取的数据将包括来源、格式、健康领域和目标年龄范围的描述。将记录与健康素养领域相关的内容，并确定可用健康信息中的差距。研究结果将以叙述、表格和可视化形式呈现。
由于不会收集原始数据，因此无需获得伦理批准。研究结果将在同行评议文献、会议演讲、为智障人士及其家属提供的综合资源以及为医疗服务管理人员和政策制定者提供的摘要文件中进行传播。
