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制定具有理论基础的策略,以促进患者和公众参与实施研究。

Developing theoretically grounded strategies to enable and promote patient and public involvement in implementation research studies.

作者信息

Semkina Antonina, Boulton Richard, Sevdalis Nick, Jones Fiona, Markham Sarah

机构信息

NIHR Policy Research Unit in Health and Social Care Workforce, The Policy Institute, King's College London, London, UK.

Institute for Medical and Biomedical Education, St George's University of London, London, UK.

出版信息

Res Involv Engagem. 2025 Apr 1;11(1):32. doi: 10.1186/s40900-025-00702-6.

Abstract

Implementation research has emerged as a branch of healthcare research. It studies methods to promote the application of research findings into practice, and, thus, to improve the quality and effectiveness of services and care. Patient and public involvement (PPI) in implementation research is a means of bridging research and practice. However, the progress to achieve greater involvement is slow. The reasons might include potential tensions when including perspectives of stakeholders with diverse skills, backgrounds and experiences, and the risk of reproducing paternalistic clinician-patient relationship tradition of healthcare research, which is incompatible with PPI.In this commentary we shared the PPI navigation approach that we used in a recent implementation research project, where eight patient and public partners attended three 1-hour sessions to discuss a specific implementation research methodology. On reflection, we categorised the approach into three strategies that aimed to empower patient and public partners and promote their senses of autonomy, relatedness and competence. According to the Basic Psychological Needs Theory, these are principal human needs, fulfilment of which may lead to higher motivation, performance, and well-being. We outlined the process of applying each strategy and used this and other theories to show why this can lead to positive partner and research outcomes. Two patient and public partners provided their perspectives about what worked and what could be further improved. The strategies can be used in future implementation studies, and we provide recommendations for the development of more strategies using the theory-based approach.

摘要

实施研究已成为卫生保健研究的一个分支。它研究促进将研究成果应用于实践的方法,从而提高服务和护理的质量与效果。患者及公众参与(PPI)实施研究是弥合研究与实践的一种方式。然而,实现更大程度参与的进展缓慢。原因可能包括纳入具有不同技能、背景和经验的利益相关者观点时可能产生的紧张关系,以及重现医疗保健研究中家长式医患关系传统的风险,而这种传统与患者及公众参与不相容。在这篇评论中,我们分享了我们在最近一个实施研究项目中使用的患者及公众参与导航方法,在该项目中,八名患者和公众合作伙伴参加了三次为时1小时的会议,讨论一种特定的实施研究方法。经过反思,我们将该方法归类为三种策略,旨在增强患者和公众合作伙伴的权能,并提升他们的自主感、关联感和胜任感。根据基本心理需求理论,这些是主要的人类需求,满足这些需求可能会带来更高的动机、表现和幸福感。我们概述了应用每种策略的过程,并运用这一理论及其他理论来说明为什么这会带来积极的合作伙伴和研究成果。两名患者和公众合作伙伴阐述了哪些做法有效以及哪些方面可以进一步改进。这些策略可用于未来的实施研究,我们还就使用基于理论的方法开发更多策略提出了建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/81e1/11963640/2b9e872bfe5d/40900_2025_702_Fig1_HTML.jpg

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