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为自闭症及感觉过度敏感儿童提供的感官家庭支持:育儿痛苦耐受力的中介作用。

Sensory Family Accommodation for Autistic and Sensory Overresponsive Children: The Mediating Role of Parenting Distress Tolerance.

作者信息

Ben-Sasson Ayelet, Zisserman Adi

机构信息

Ayelet Ben-Sasson, OT, ScD, is Therapist and Research Associate, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel. At the time of the study, Ben-Sasson was Assistant Professor, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel;

Adi Zisserman, OT, MOT, is Therapist, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel. At the time of the study, Zisserman was also Master's Student, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel.

出版信息

Am J Occup Ther. 2025 May 1;79(3). doi: 10.5014/ajot.2025.050790.

DOI:10.5014/ajot.2025.050790
PMID:40179137
Abstract

IMPORTANCE

Family accommodation of anxiety disorders is associated with poorer outcomes; therefore, they are important to detect. A child's sensory problems often cause anxiety and disrupt family routines, which can increase family accommodation.

OBJECTIVE

To compare family sensory accommodation among children with autism spectrum disorder (ASD), children with sensory overresponsiveness (SOR), and typically developing children (TD). To examine the role of parenting distress tolerance in explaining the relation between SOR and family accommodation.

DESIGN

Cross-sectional case control design involving nonrandomized sampling and a survey methodology.

SETTING

Internet.

PARTICIPANTS

Parents of 57 ASD children, 54 SOR children, and 48 TD children. Groups were matched on child age and ethnicity.

OUTCOMES AND MEASURES

The Short Sensory Profile 2, Adapted SensOR Inventory (total SOR), Family Accommodations Scale for Sensory Over-Responsivity (FASENS), and the Parenting Distress Tolerance Scale (P-DTS).

RESULTS

The groups with ASD or SOR (clinical groups) had a higher frequency of family sensory accommodation, and these accommodations showed greater interference with child and family well-being than among the TD group. The clinical groups had significantly more bothersome sensations and lower P-DTS scores than the TD group. In the clinical groups, the P-DTS mediated the relation between total SOR and FASENS scores, controlling for mother's years of education.

CONCLUSIONS AND RELEVANCE

Family sensory accommodation was more frequent among families of children with ASD or SOR and interfered more with child and family well-being. For clinical groups, being bothered by more sensations reduced parenting distress tolerance, which increased family accommodation. Plain-Language Summary: When children have strong reactions to sensory experiences, families often change their routines to prevent discomfort. This is called family sensory accommodation-when family members adjust their behaviors to avoid or minimize their child's sensory challenges and the associated distress. Although this may reduce stress in the short term, it can also reinforce anxiety and limit a child's ability to cope. We found that parents of children with autism spectrum disorder or sensory overresponsiveness were more likely to make these accommodations compared with parents of typically developing children. These accommodations were linked to greater disruptions in both child and family well-being. We also found that parents who had more difficulty managing their own stress were more likely to engage in family sensory accommodation. These findings highlight the need for occupational therapists to support families in reducing restrictive accommodations while helping children build independence and coping skills.

摘要

重要性

焦虑症的家庭迁就与较差的预后相关;因此,识别这些情况很重要。儿童的感觉问题常引发焦虑并扰乱家庭日常,这会增加家庭迁就行为。

目的

比较自闭症谱系障碍(ASD)儿童、感觉过度反应(SOR)儿童和发育正常儿童(TD)的家庭感觉迁就情况。探讨养育压力耐受性在解释SOR与家庭迁就之间关系中的作用。

设计

采用非随机抽样和调查方法的横断面病例对照设计。

设置

互联网。

参与者

57名ASD儿童、54名SOR儿童和48名TD儿童的父母。各组在儿童年龄和种族方面进行了匹配。

结果与测量

简版感觉概况量表2、改编的感觉过度反应量表(总SOR)、感觉过度反应的家庭迁就量表(FASENS)和养育压力耐受性量表(P-DTS)。

结果

患有ASD或SOR的组(临床组)家庭感觉迁就的频率更高,与TD组相比,这些迁就行为对儿童和家庭幸福的干扰更大。临床组比TD组有更多令人烦恼的感觉,且P-DTS得分更低。在临床组中(控制母亲的受教育年限),P-DTS介导了总SOR与FASENS得分之间的关系。

结论与意义

ASD或SOR儿童家庭中的感觉迁就更为常见,且对儿童和家庭幸福的干扰更大。对于临床组而言,更多的感觉困扰会降低养育压力耐受性,进而增加家庭迁就行为。

通俗易懂的总结

当儿童对感觉体验有强烈反应时,家庭通常会改变日常习惯以避免不适。这被称为家庭感觉迁就,即家庭成员调整自己的行为以避免或最小化孩子的感觉挑战及相关困扰。虽然这可能在短期内减轻压力,但也可能强化焦虑并限制孩子的应对能力。我们发现,与发育正常儿童的父母相比,自闭症谱系障碍或感觉过度反应儿童的父母更有可能做出这些迁就行为。这些迁就行为与儿童和家庭幸福的更大干扰有关。我们还发现,在管理自身压力方面有更多困难的父母更有可能进行家庭感觉迁就。这些发现凸显了职业治疗师支持家庭减少限制性迁就行为,同时帮助儿童培养独立性和应对技能的必要性。

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