在养老院研究中实现包容性最大化：从AFRI-c随机对照试验中吸取的经验教训。
Maximising inclusivity in care home research: Lessons learned from the AFRI-c randomised controlled trial.
作者信息
Campbell-Smith Laurel, Rees Sophie, Sprackman Jane, Sargent Karen, Hay Alastair D, Brierley Rachel Cm
机构信息
Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Patient and public contributor, UK.
出版信息
J Frailty Aging. 2025 Jun;14(3):100038. doi: 10.1016/j.tjfa.2025.100038. Epub 2025 Apr 5.
Ethical and procedural requirements make research in care homes challenging. With people living longer globally, it is essential that older people are included in research, including within the care home setting. We conducted a randomised controlled trial (AFRI-c) in 91 care homes across England, aiming to make the study available to every eligible resident. Facilitators included flexible models for receiving consent; commitment from care home staff, residents and families; tailored and specific training for care home staff; and support from national research infrastructure to engage care homes in research. To facilitate inclusive care home research, we recommend consulting with care homes about their research priorities; continuing investment in national research infrastructure for care homes; using advance directives for research planning for care home residents; embedding research nurses in care home environments; and more guidance for researchers and ethics committees on applying legal frameworks regarding capacity to research settings.
伦理和程序要求使得在养老院进行研究具有挑战性。随着全球人口寿命的延长，将老年人纳入研究至关重要，包括在养老院环境中。我们在英格兰的91家养老院进行了一项随机对照试验（AFRI-c），旨在让每个符合条件的居民都能参与该研究。促进因素包括灵活的同意接收模式；养老院工作人员、居民和家庭的承诺；为养老院工作人员提供量身定制的特定培训；以及国家研究基础设施的支持，以使养老院参与研究。为了促进包容性的养老院研究，我们建议与养老院就其研究重点进行协商；持续投资于针对养老院的国家研究基础设施；使用预先指令进行养老院居民的研究规划；将研究护士纳入养老院环境；以及为研究人员和伦理委员会提供更多关于在研究环境中应用能力相关法律框架的指导。
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