Dickson Elizabeth, Kuhlemeier Alena, Adsul Prajakta, Sanchez-Youngman Shannon, Myers Katie, Akintobi Tabia Henry, Rosas Lisa G, Mendoza Jason A, Oetzel John, Castro-Reyes Paige, Alaniz Christina, Jacquez Belkis, Wallerstein Nina
University of New Mexico Health Sciences Center, College of Population Health, Albuquerque, NM, USA.
University of New Mexico Health Sciences Center, Comprehensive Cancer Center, Albuquerque, NM, USA.
J Clin Transl Sci. 2025 Feb 5;9(1):e44. doi: 10.1017/cts.2025.20. eCollection 2025.
Community-engaged research/community-based participatory research/patient-engaged research (CEnR/CBPR/PEnR) are increasingly recognized as important approaches for addressing health equity. However, there is limited support for CEnR/CBPR/PEnR within Academic Health Centers (AHCs). It is important for AHCs to measure and monitor the context, process, and policies in support for CEnR/CBPR/PEnR. The team developed the first Institutional Multi-Sector Survey (IMSS) instrument to assess and explore CEnR/CBPR/PEnR-related practices at three AHCs.
Working with "champion teams" consisting of academic leaders, researchers, and patient/community partners at each AHC, we developed the IMSS to assess the following domains: institutional mission, vision, and values; CEnR/CBPR/PEnR policies/practices; community processes/structures; function of formal community advisory boards; climate/culture for CEnR/CBPR; perceptions of institutional leadership for CEnR/CBPR/PEnR. The survey was piloted to a convenience sample of CEnR/CBPR/PEnR participants at each AHC site.
A sample aggregated across all sites consisting of community ( = 49) and academic ( = 50) participants perceived high levels of advocacy for CEnR/CBPR/PEnR among their AHC research teams. Participants indicated that institutional leadership supported CEnR/CBPR/PEnR in principle, but resources to build CEnR/CBPR/PEnR capacity at their respective institutions were lacking. Differences in responses from community and academic partners are summarized.
While limited by survey length and question adaptation, the findings contribute to identification of institutional barriers and facilitators to CEnR/CBPR/PEnR in AHCs. These findings are critically important to support and improve CEnR/CBPR/PEnR practice in academic institutions and to elevate community partner voices and needs for advancing community and patient partners' research.
社区参与研究/基于社区的参与性研究/患者参与研究(CEnR/CBPR/PEnR)日益被视为解决健康公平问题的重要方法。然而,学术健康中心(AHCs)对CEnR/CBPR/PEnR的支持有限。AHCs衡量和监测支持CEnR/CBPR/PEnR的背景、过程和政策非常重要。该团队开发了首个机构多部门调查问卷(IMSS)工具,以评估和探索三家AHCs中与CEnR/CBPR/PEnR相关的实践。
我们与每个AHC由学术领袖、研究人员和患者/社区伙伴组成的“冠军团队”合作,开发了IMSS来评估以下领域:机构使命、愿景和价值观;CEnR/CBPR/PEnR政策/实践;社区过程/结构;正式社区咨询委员会的职能;CEnR/CBPR的氛围/文化;对CEnR/CBPR/PEnR机构领导的看法。该调查在每个AHC站点对CEnR/CBPR/PEnR参与者的便利样本中进行了试点。
来自所有站点的一个由社区(n = 49)和学术(n = 50)参与者组成的样本认为,他们的AHC研究团队对CEnR/CBPR/PEnR的支持程度很高。参与者表示,机构领导原则上支持CEnR/CBPR/PEnR,但各自机构缺乏建设CEnR/CBPR/PEnR能力的资源。总结了社区和学术伙伴回应的差异。
虽然受到调查长度和问题适应性的限制,但这些发现有助于识别AHCs中CEnR/CBPR/PEnR的机构障碍和促进因素。这些发现对于支持和改进学术机构中的CEnR/CBPR/PEnR实践,以及提升社区伙伴的声音和推进社区及患者伙伴研究的需求至关重要。