Chiu S-J, Chen P-T, Chou Y-T, Chien L-Y
Department of Nursing, National Yang-Ming University, Taipei, Taiwan.
Department of Nursing, Cardinal Tien Junior College of Healthcare and Management, New Taipei City, Taiwan.
J Intellect Disabil Res. 2017 Apr;61(4):373-384. doi: 10.1111/jir.12356. Epub 2017 Jan 16.
Early intervention (EI) practitioners provide individualised family-centred services to enhance the quality of life (QOL) of families of children with developmental delay (DD). Family QOL (FQOL) could be an important outcome indictor for EI, but there is no measurement tool for FQOL in Mandarin Chinese. The purpose of this study was to translate the Beach Centre FQOL Scale (BCFQOL) into Mandarin Chinese and to examine the psychometric properties of the scale in families of children with DD.
Two independent translations were performed by two bilingual professors whose mother tongue was Mandarin, and two back-translations were performed by two bilingual professionals whose mother tongue was English. The translated and back-translated questionnaires were reviewed to revise the questionnaire. Five experts assessed the accuracy, equivalence and cultural appropriateness of the scale, and 10 parents of children with DD were interviewed to examine its readability, clarity and cultural appropriateness. From July to November 2014, we recruited 360 primary caregivers of children with DD who were receiving EI in northern Taiwan to validate the scale. The participants completed the BCFQOL as well as a one item overall ratings of their FQOL.
Item analysis was performed to assess each item. Confirmatory factor analysis supported the following five-factor structure as in the original scale: family interaction, parenting, emotional well-being, physical/material well-being and disability-related support. The scale exhibited excellent internal consistency reliability (Cronbach's alpha = 0.96) and test-retest reliability at a 2-week interval (intra-class correlation coefficient = 0.92). Contrasted group validity was supported by significantly higher BCFQOL scores in the top quartile of the overall FQOL rating than the lowest quartile. The convergent validity was supported by the significant correlation between the FQOL item and the BCFQOL (r = 0.608, p < 0.01).
This study showed that the Mandarin Chinese version of the BCFQOL is reliable and valid for Taiwanese families of children with DD. The instrument could be applied to assess FQOL in families of children with DD who are receiving EI in order to evaluate family services and supports.
早期干预（EI）从业者提供以家庭为中心的个性化服务，以提高发育迟缓（DD）儿童家庭的生活质量（QOL）。家庭生活质量（FQOL）可能是EI的一个重要结果指标，但目前尚无中文普通话版的FQOL测量工具。本研究旨在将海滩中心家庭生活质量量表（BCFQOL）翻译成中文普通话，并检验该量表在DD儿童家庭中的心理测量特性。
由两位母语为普通话的双语教授进行两次独立翻译，由两位母语为英语的双语专业人员进行两次回译。对翻译和回译后的问卷进行审查以修订问卷。五位专家评估了该量表的准确性、等效性和文化适宜性，并对10位DD儿童的家长进行访谈，以检验其可读性、清晰度和文化适宜性。2014年7月至11月，我们招募了360名在台湾北部接受EI的DD儿童的主要照顾者来验证该量表。参与者完成了BCFQOL以及一项关于他们FQOL的整体评分。
进行项目分析以评估每个项目。验证性因素分析支持了与原量表相同的以下五因素结构：家庭互动、养育子女、情绪幸福感、身体/物质幸福感和残疾相关支持。该量表表现出出色的内部一致性信度（克朗巴哈系数α = 0.96）和两周间隔的重测信度（组内相关系数 = 0.92）。在整体FQOL评分的前四分位数中，BCFQOL得分显著高于最低四分位数，支持了对比组效度。FQOL项目与BCFQOL之间的显著相关性（r = 0.608，p < 0.01）支持了收敛效度。
本研究表明，BCFQOL的中文普通话版本对台湾DD儿童家庭是可靠且有效的。该工具可用于评估接受EI的DD儿童家庭的FQOL，以评估家庭服务和支持情况。
