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在资源受限环境中创建一种可用且有效的数字干预措施,以支持男性进行艾滋病毒检测并与护理服务建立联系:基于以人为本的方法和人机交互方法的迭代设计

Creating a Usable and Effective Digital Intervention to Support Men to Test for HIV and Link to Care in A Resource-Constrained Setting: Iterative Design Based on A Person-Based Approach and Human Computer Interaction Methods.

作者信息

Zeitlin Anya, Mathenjwa Thulile, Zuma Thembelihle, Wyke Sally, Matthews Philippa, McGrath Nuala, Seeley Janet, Shahmanesh Maryam, Blandford Ann

机构信息

UCL Interaction Centre, University College London, London, United Kingdom.

Africa Health Research Institute, Durban, South Africa.

出版信息

JMIR Form Res. 2025 Apr 17;9:e65185. doi: 10.2196/65185.

Abstract

BACKGROUND

It is challenging to design usable and effective digital health interventions (DHIs). The person-based approach (PBA) has been proposed to incorporate users' perspectives for the design of DHIs. However, it does not explicitly describe the iterative stages of design and evaluation that are essential in moving from early planning to deployment. For this, we draw on methods from human computer interaction (HCI) that have been developed for various situations.

OBJECTIVE

This study aimed to reflect on the adaptation and synthesis of PBA and HCI approaches to developing DHIs. We present a case study applying both approaches to develop Empowering People through Informed Choices for HIV (EPIC-HIV1), a DHI designed for men living in rural KwaZulu-Natal, South Africa, intended to support them in making an informed choice about whether to take an HIV test and, if necessary, engage in care.

METHODS

We conducted a retrospective analysis of the documentation generated during the development of EPIC-HIV1 including findings about requirements, design representations, and the results of iterative rounds of testing. We developed an account of the process, the outcomes, and the strengths and limitations of the design and evaluation techniques applied. We also present the design of EPIC-HIV1 and summarize considerations when designing for hard-to-reach people in such settings.

RESULTS

The PBA was applied to deliver a first prototype. This helped identify key messages to convey and how to manage issues such as user privacy, but the resulting prototype was judged by the team not to be engaging for potential users, and it was unclear whether the design was inclusive of people with low digital or health literacy. We therefore introduced methods from HCI to iteratively test and refine the app. Working with local community representatives, we conducted four refinement cycles with 29 participants, adapting and retesting the app until no further changes were needed. Key changes included making it clearer what the consequences of selecting options in the app were and changing wording to minimize misconceptions (eg, that the app would test for HIV) while addressing common concerns about testing and emphasizing long-term benefits of engaging with care, if needed.

CONCLUSIONS

Techniques for developing DHIs need to be situationally appropriate. The PBA enabled us to establish both empirical data and theory to design the content of EPIC-HIV1, but it did not directly inform interaction design to make the app usable and effective for the intended users; HCI techniques tailored to the setting enabled us to refine the app to be easy for men with little familiarity with digital technologies to use within the constraints of the setting. Iterative testing ensured the app was easy to use and that the intended clinical messages were communicated effectively.

摘要

背景

设计可用且有效的数字健康干预措施(DHI)具有挑战性。已提出基于人的方法(PBA),将用户视角纳入DHI的设计中。然而,它并未明确描述从早期规划到部署过程中至关重要的设计和评估迭代阶段。为此,我们借鉴了针对各种情况开发的人机交互(HCI)方法。

目的

本研究旨在思考PBA和HCI方法在开发DHI中的适应性和综合应用。我们展示一个案例研究,应用这两种方法来开发“通过艾滋病毒知情选择增强权能”(EPIC-HIV1),这是一款为南非夸祖鲁-纳塔尔农村地区男性设计的DHI,旨在帮助他们就是否进行艾滋病毒检测做出明智选择,必要时接受治疗。

方法

我们对EPIC-HIV1开发过程中产生的文档进行了回顾性分析,包括需求调查结果、设计表示以及多轮迭代测试的结果。我们梳理了该过程、成果以及所应用的设计和评估技术的优缺点。我们还展示了EPIC-HIV1的设计,并总结了在此类环境中为难以接触到的人群进行设计时的注意事项。

结果

应用PBA生成了第一个原型。这有助于确定要传达的关键信息以及如何处理用户隐私等问题,但团队认为生成的原型对潜在用户缺乏吸引力,并且不清楚该设计是否涵盖了数字素养或健康素养较低的人群。因此,我们引入HCI方法对应用程序进行迭代测试和优化。与当地社区代表合作,我们对29名参与者进行了四轮优化循环,对应用程序进行调整和重新测试,直到无需进一步修改。关键变化包括更明确地说明在应用程序中选择选项的后果,更改措辞以尽量减少误解(例如,应用程序会检测艾滋病毒),同时解决对检测的常见担忧,并强调必要时接受治疗的长期益处。

结论

开发DHI的技术需要因地制宜。PBA使我们能够建立实证数据和理论来设计EPIC-HIV1的内容,但它并未直接指导交互设计以使应用程序对目标用户可用且有效;针对该环境量身定制的HCI技术使我们能够在该环境的限制范围内,将应用程序优化得便于对数字技术不太熟悉的男性使用。迭代测试确保了应用程序易于使用,并有效地传达了预期的临床信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/12ec/12046270/54099397aef1/formative_v9i1e65185_fig1.jpg

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