一款针对长期新冠患者的在线自我管理工具。

: An online self-management tool for people with long COVID.

作者信息

Naik Hiten, Pongratz Kyla, Malbeuf Michelle, Kung Sonya, Last Lori, Sugiyama Asuka, Khor Esther, McGuire Marlee, Levin Adeera, Tran Karen C

机构信息

Post-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, Canada.

Department of Medicine, The University of British Columbia, Vancouver, Canada.

出版信息

Internet Interv. 2025 Apr 4;40:100825. doi: 10.1016/j.invent.2025.100825. eCollection 2025 Jun.

DOI:10.1016/j.invent.2025.100825

PMID:40256200

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12008151/

Abstract

BACKGROUND

Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was to develop an online tool for individuals with long COVID that is patient-centered, accessible, and customizable to meet individual needs.

METHODS

(www.longCOVIDguide.ca) was developed in British Columbia (BC), Canada, by a team that included long COVID clinicians and patient partners. Site visitors answer questions about their symptoms, and generates a curated set of self-management resources tailored to their needs. Since its launch in August 2023, Google Analytics has been used to monitor website activity.

RESULTS

Within the first year, MyGuide had 52,578 total page views and 8570 new users. The most popular method to access was by computer (56.3 % of users), and the most represented city was Vancouver, BC (23.5 % of users). The most popular topics were "Post Exertional Malaise" (1339 sessions) and "What is long COVID?" (1257 sessions).

CONCLUSIONS

An online tool to support chronic disease self-management can be successfully co-developed with patient partners and engagement tracked using web analytics.

摘要