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本文引用的文献

1
Communicating neurocognitive impacts of childhood cancer: Engaging stakeholders to identify research priorities.传达儿童癌症的神经认知影响:让利益相关者参与,以确定研究重点。
Patient Educ Couns. 2023 Nov;116:107935. doi: 10.1016/j.pec.2023.107935. Epub 2023 Aug 3.
2
Intelligent physical activity versus modified behavioral activation in adolescent and young adult cancer patients with psychological distress: A randomized, controlled pilot trial.智能体力活动与改良行为激活治疗青少年及年轻成年癌症患者心理困扰的随机对照初步试验
Cancer Med. 2023 Jan;12(2):1935-1948. doi: 10.1002/cam4.5030. Epub 2022 Jul 18.
3
Addressing Schooling in Children With Cancer-It's Everybody's Job, So It's Nobody's Job: An Explanatory Mixed-Methods Evaluation.关注癌症患儿的教育问题——人人有责,人人无责:一项解释性混合方法评估。
J Pediatr Hematol Oncol Nurs. 2022 Jul-Aug;39(4):221-230. doi: 10.1177/27527530211073295. Epub 2022 Mar 5.
4
Supervised Exercise Interventions in Childhood Cancer Survivors: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.儿童癌症幸存者的监督运动干预:随机对照试验的系统评价和荟萃分析
Children (Basel). 2022 Jun 2;9(6):824. doi: 10.3390/children9060824.
5
Recommendations for the surveillance of education and employment outcomes in survivors of childhood, adolescent, and young adult cancer: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group.儿童、青少年和青年期癌症幸存者教育和就业结局监测建议:来自国际儿童癌症晚期效应指南协调组的报告。
Cancer. 2022 Jul 1;128(13):2405-2419. doi: 10.1002/cncr.34215. Epub 2022 Apr 18.
6
Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group.儿童、青少年和青年癌症幸存者心理健康问题监测建议:来自国际儿童癌症晚期效应指南协调组的报告。
Lancet Oncol. 2022 Apr;23(4):e184-e196. doi: 10.1016/S1470-2045(21)00750-6.
7
Young Adult Cancer Survivorship: Recommendations for Patient Follow-up, Exercise Therapy, and Research.青少年癌症幸存者:患者随访、运动疗法和研究建议。
JNCI Cancer Spectr. 2020 Oct 28;5(1). doi: 10.1093/jncics/pkaa099. eCollection 2021 Feb.
8
A systematic review of the educational experiences and needs of children with cancer returning to school.儿童癌症患者重返学校的教育经历和需求的系统评价。
J Adv Nurs. 2021 Jul;77(7):2971-2994. doi: 10.1111/jan.14784. Epub 2021 Feb 17.
9
Barriers to Schooling in Survivorship: The Role of Neuropsychological Assessment.生存者就学障碍:神经心理学评估的作用。
JCO Oncol Pract. 2020 Dec;16(12):e1516-e1523. doi: 10.1200/OP.20.00549. Epub 2020 Oct 2.
10
Childhood cancer: Survival, treatment modalities, late effects and improvements over time.儿童癌症:存活率、治疗方式、长期影响及随时间的改善。
Cancer Epidemiol. 2021 Apr;71(Pt B):101733. doi: 10.1016/j.canep.2020.101733. Epub 2020 May 24.

《特殊教育法下儿童癌症幸存者受教育权保护的比较分析》

A Comparative Analysis of the Protection of the Rights of Childhood Cancer Survivors to Education Under Special Education Law.

作者信息

Flood Margaret, Carey Lisa

机构信息

Education Department, Maynooth University, IE.

Kennedy Kreiger, Johns Hopkins University, US.

出版信息

Contin Educ. 2025 Apr 30;6(1):74-90. doi: 10.5334/cie.137. eCollection 2025.

DOI:10.5334/cie.137
PMID:40321897
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12047622/
Abstract

Access to equitable education for children treated for cancer is of growing international concern across education, medicine, and related fields. Neurocognitive late effects of childhood cancer and treatment are well established. This impact on cognition results in difficulties with thinking, learning, peer-relationships, and quality of life. Formalized In-School Supports (ISS) can ameliorate the negative impacts of neurocognitive late effects, yet the literature suggests that children treated for cancer often have difficulty accessing these services. This paper reviews the ISS legislation of eight countries regarding protections offered to children treated for cancer and evidence of access to ISS within the literature. The purpose of this review was to look for common barriers for children treated with cancer accessing educational support through ISS. This review identifies gaps between ISS student-focused disability legislation, and practice to inform positive policy change.

摘要

癌症患儿获得公平教育的问题日益受到教育、医学及相关领域的国际关注。儿童癌症及其治疗的神经认知晚期效应已得到充分证实。这种对认知的影响会导致思维、学习、同伴关系及生活质量方面的困难。正规的校内支持(ISS)可以减轻神经认知晚期效应的负面影响,但文献表明,接受癌症治疗的儿童往往难以获得这些服务。本文回顾了八个国家关于为接受癌症治疗的儿童提供保护的校内支持立法,以及文献中关于获得校内支持的证据。本综述的目的是寻找接受癌症治疗的儿童通过校内支持获得教育支持的常见障碍。本综述确定了以学生为中心的校内支持残疾立法与实践之间的差距,以为积极的政策变革提供参考。