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癌症患者所需的癌症相关信息。

Cancer related information that cancer patients need.

作者信息

Osowiecka K, Rucińska M, Abe T, Gwara A, Szwiec M, Kurowicki M, Kieszkowska-Grudny A, Kołb-Sielecki J, Hagihara A

机构信息

Department of Psychology and Sociology of Health and Public Health, School of Public Health, University of Warmia and Mazury in Olsztyn, Warszawska 30, 10-082, Olsztyn, Poland.

Department of Oncology, Collegium Medicum University of Warmia and Mazury in Olsztyn, Wojska Polskiego 37, 10-228, Olsztyn, Poland.

出版信息

Sci Rep. 2025 May 6;15(1):15811. doi: 10.1038/s41598-025-99498-4.

Abstract

Good patient-doctor communication may help patients regulate their emotions, understand medical information, and assert their need for information and explanations. Cancer patients cited information needs as the most frequent unmet non-medical needs during oncological treatment. Adequate patient knowledge about the disease and treatment can affect the patient's mental state, quality of life, and satisfaction with care. The study aimed to determine whether and what kind of cancer-related information is desired by cancer patients in Poland. The study was carried out on a group of 405 cancer patients using the Shortened Cassileth's Information Styles Questionnaire (SCISQ) and Spielberg's State-Trait Anxiety Inventory (STAI 20). Cancer patients in Poland want to receive information concerning numerous aspects of illness and treatment. Most patients wanted as much information about their disease and treatment as possible, both good and bad. Tumor localization (i.e., colorectal cancer, breast cancer), palliative intention of treatment, and low anxiety were factors increasing patients' need for cancer information. Patients with low anxiety find it easier to express their needs and share information with others. Effective identification of information needs and non-delayed recognition and treatment of anxiety should be a part of a holistic approach to cancer care in daily clinical practice.

摘要

良好的医患沟通有助于患者调节情绪、理解医疗信息,并表达他们对信息和解释的需求。癌症患者将信息需求列为肿瘤治疗期间最常见的未得到满足的非医疗需求。患者对疾病和治疗有足够的了解会影响其心理状态、生活质量以及对护理的满意度。该研究旨在确定波兰的癌症患者是否以及希望获得何种癌症相关信息。研究使用简化的卡西莱特信息风格问卷(SCISQ)和斯皮尔伯格状态-特质焦虑量表(STAI 20)对405名癌症患者进行了调查。波兰的癌症患者希望获得有关疾病和治疗诸多方面的信息。大多数患者希望尽可能多地了解有关他们疾病和治疗的信息,包括好的和坏的。肿瘤定位(即结直肠癌、乳腺癌)、治疗的姑息意图以及低焦虑是增加患者对癌症信息需求的因素。焦虑程度低的患者更容易表达自己的需求并与他人分享信息。在日常临床实践中,有效识别信息需求以及不延迟地识别和治疗焦虑应成为癌症整体护理方法的一部分。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d22d/12055984/a5a4dc797c70/41598_2025_99498_Fig1_HTML.jpg

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