Institute of Healthcare, State School of Technology and Economics in Jaroslaw, 37-500 Jaroslaw, Poland.
Chair and Department of Endocrinology, Medical University of Lublin, 20-090 Lublin, Poland.
Int J Environ Res Public Health. 2020 Dec 24;18(1):87. doi: 10.3390/ijerph18010087.
: As the literature analysis shows, cancer patients experience a variety of different needs. Each patient reacts differently to the hardships of the illness. Assessment of needs allows providing more effective support, relevant to every person's individual experience, and is necessary for setting priorities for resource allocation, for planning and conducting holistic care, i.e., care designed to improve a patient's quality of life in a significant way. : A population survey was conducted between 2018 and 2020. Cancer patients, as well as their caregivers, received an invitation to take part in the research, so their problems and needs could be assessed. : The study involved 800 patients, 78% women and 22% men. 66% of the subjects were village residents, while 34%-city residents. The mean age of patients was 62 years, SD = 11.8. The patients received proper treatment within the public healthcare. The surveyed group of caregivers was 88% women and 12% men, 36% village residents and 64% city residents. Subjects were averagely 57 years old, SD 7.8. At the time of diagnosis, the subjects most often felt anxiety, despair, depression, feelings of helplessness (46%, 95% CI: 40-48). During illness and treatment, the subjects most often felt fatigued (79%, 95% CI: 70-80). Analysis of needs showed that 93% (95% CI: 89-97) of patients experienced a certain level of need for help in one or more aspects. : Patients diagnosed with cancer have a high level of unmet needs, especially in terms of psychological support and medical information. Their caregivers also experience needs and concerns regarding the disease. Caregivers should be made aware of the health consequences of cancer and consider appropriate supportive care for their loved ones.
: 文献分析表明,癌症患者有多种不同的需求。每位患者对疾病的困难反应都不同。需求评估可以提供更有效的支持,与每个人的个体经历相关,并且对于分配资源、规划和开展整体护理(即旨在显著改善患者生活质量的护理)至关重要。: 2018 年至 2020 年期间进行了一项人群调查。邀请癌症患者及其护理人员参与研究,以评估他们的问题和需求。: 该研究涉及 800 名患者,其中 78%为女性,22%为男性。66%的受试者为农村居民,34%为城市居民。患者的平均年龄为 62 岁,标准差为 11.8。患者在公共医疗保健体系中接受了适当的治疗。调查的护理人员组中,88%为女性,12%为男性,36%为农村居民,64%为城市居民。护理人员的平均年龄为 57 岁,标准差为 7.8。在诊断时,受试者最常感到焦虑、绝望、抑郁和无助感(46%,95%置信区间:40-48)。在疾病和治疗期间,受试者最常感到疲劳(79%,95%置信区间:70-80)。需求分析表明,93%(95%置信区间:89-97)的患者在一个或多个方面经历了某种程度的帮助需求。: 诊断为癌症的患者有较高的未满足需求,特别是在心理支持和医疗信息方面。他们的护理人员也对疾病有需求和担忧。应让护理人员了解癌症的健康后果,并考虑为其亲人提供适当的支持性护理。