Mc Kittrick Andrea, Gustafsson Louise, Hodson Tenelle, Di Tommaso Amelia
Department of Occupational Therapy, Royal Brisbane and Women's Hospital, Herston, QLD, Australia.
Discipline of Occupational Therapy, School of Health Sciences and Social Work, Griffith University, QLD, Australia.
Br J Occup Ther. 2025 Feb;88(2):116-128. doi: 10.1177/03080226241288162. Epub 2024 Oct 17.
Measurement of postburn injury is important to assess impact of interventions, monitor symptoms, and direct treatment. Outcome measures are important to enable patients' views to be incorporated into their clinical care and direct healthcare. To date, there are few patient-reported outcome measures specific for the burn's population, only one specific patient reported questionnaire exists for hand burn injuries. For outcome measures to be person focused, it is important to have individuals who have experienced the injury join the development team to consult and advise on properties for inclusion. The aim of this study was to co-design a specific outcome measure for severe hand burn injuries.
Participatory Action Research was used to co-design the outcome measure with experienced allied health professionals, individuals with hand burn injuries, and researchers. Participatory Action Research acknowledges the depth and breadth of experience of all co-researchers. Content analysis was used to systematically analyze meaning and relationships from each cycle.
In cycle 1-the constructs for measurement and activities for inclusion in the outcome measure were selected over a series of virtual meetings. The 18 activities included measure patterns of hand movement, pinch, and grip strength, which can be repeatedly measured over time across recovery. In cycle 2-two rating scales were developed one for clinicians and one for patients.
The newly developed outcome measure will require further testing to determine psychometric properties.
烧伤后损伤的测量对于评估干预措施的影响、监测症状以及指导治疗至关重要。结果测量对于将患者的观点纳入其临床护理并指导医疗保健非常重要。迄今为止，针对烧伤人群的患者报告结局测量方法很少，仅有一种针对手部烧伤损伤的特定患者报告问卷。为了使结局测量以患者为中心，让有过受伤经历的个体加入开发团队，就纳入的属性进行咨询和提供建议非常重要。本研究的目的是共同设计一种针对严重手部烧伤损伤的特定结局测量方法。
采用参与式行动研究与经验丰富的专职医疗人员、手部烧伤患者个体以及研究人员共同设计结局测量方法。参与式行动研究认可所有共同研究者经验的深度和广度。采用内容分析法系统分析每个周期的意义和关系。
在第1个周期——通过一系列虚拟会议选择了结局测量的测量指标和纳入的活动。这18项活动包括测量手部运动模式、捏力和握力，这些指标可在恢复过程中随时间重复测量。在第2个周期——开发了两个评分量表，一个供临床医生使用，一个供患者使用。
新开发的结局测量方法需要进一步测试以确定其心理测量特性。
