Marshall Jessica, Papavasiliou Evie, Allan Louise, Bradbury Katherine, Fox Chris, Hawkes Matthew, Irvine Anne, Moniz-Cook Esme, Pick Aimee, Polley Marie, Rathbone Amy, Reeve Joanne, Robinson Dame Louise, Rook George, Sadler Euan, Wolverson Emma, Walker Sarah, Cross Jane
University of East Anglia, Norwich, UK.
University of Leeds, Woodhouse, Leeds, UK.
Health Expect. 2025 Jun;28(3):e70286. doi: 10.1111/hex.70286.
Carers of people living with dementia (PLWD) face a range of complex needs, including medical, emotional, social and practical challenges, often exacerbated by social isolation and barriers to accessing support. Social prescribing (SP) addresses these needs by increasing access to non-clinical support and services. However, existing research lacks detailed descriptions of SP interventions for carers of PLWD, with limited understanding of the needs they target, the reasons for participation, their effectiveness and their potential to improve outcomes for carers of PLWD.
A complex intervention systematic review of SP for carers of PLWD was undertaken using iterative logic modelling and reported following the Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA-CI) extension statement and checklist. Six databases and grey literature were searched, supplemented by hand searching reference lists of included studies. Results were screened in a two-step process, followed by data extraction. Gough's Weight of Evidence Framework was used to assess the risk of bias in the included studies.
Fifty-two studies were included. Findings indicated SP for carers of PLWD in the United Kingdom is varied and operates in a largely uncoordinated process involving initiation by diverse stakeholders and institutions across multiple sectors. The classification of SP interventions for carers of PLWD is inconsistent, and participation is often opportunistic. Positive outcomes included improved carer mood, social connections, practical support, quality of life and better PLWD-carer relationships. However, negative outcomes were associated with intervention suitability, emotional impact, relevance and strained PLWD-carer relationships.
While the evidence suggests SP is a promising intervention for carers of PLWD, its long-term impacts, challenges of tailoring prescriptions to carers' needs and overcoming logistical issues remain. Additionally, further research is required to evaluate long-term impact, investigate specific mechanisms to tailor SP to specific carer needs and explore in greater detail the PLWD-carer relationship and its effects on SP uptake and maintenance.
A PPI advisory group was involved in the review, including providing insights into review questions, the logic model, findings and results. The group consisted of one person living with dementia and a caregiver.
痴呆症患者(PLWD)的护理人员面临一系列复杂需求,包括医疗、情感、社会和实际挑战,而社会隔离和获得支持的障碍往往会加剧这些挑战。社会处方(SP)通过增加获得非临床支持和服务的机会来满足这些需求。然而,现有研究缺乏对针对PLWD护理人员的SP干预措施的详细描述,对其目标需求、参与原因、有效性以及改善PLWD护理人员结局的潜力了解有限。
采用迭代逻辑模型对针对PLWD护理人员的SP进行复杂干预系统评价,并按照系统评价和Meta分析的首选报告项目(PRISMA-CI)扩展声明和清单进行报告。检索了六个数据库和灰色文献,并通过手工检索纳入研究的参考文献列表进行补充。结果分两步筛选,随后进行数据提取。采用高夫证据权重框架评估纳入研究的偏倚风险。
纳入52项研究。研究结果表明,英国针对PLWD护理人员的SP多种多样,且在很大程度上是一个不协调的过程,涉及多个部门的不同利益相关者和机构发起。针对PLWD护理人员的SP干预措施分类不一致,参与往往具有机会性。积极结果包括改善护理人员情绪、社会联系、实际支持、生活质量以及改善PLWD与护理人员的关系。然而,负面结果与干预的适用性、情感影响、相关性以及紧张的PLWD与护理人员的关系有关。
虽然证据表明SP对PLWD护理人员是一种有前景的干预措施,但其长期影响、根据护理人员需求量身定制处方的挑战以及克服后勤问题仍然存在。此外,还需要进一步研究来评估长期影响,研究根据特定护理人员需求量身定制SP的具体机制,并更详细地探讨PLWD与护理人员的关系及其对SP采用和维持的影响。
一个患者和公众参与(PPI)咨询小组参与了该评价,包括对评价问题、逻辑模型、研究结果和结果提供见解。该小组由一名痴呆症患者和一名护理人员组成。