遗传咨询中的调查研究。
Survey research in genetic counseling.
作者信息
Myers Melanie F, Atzinger Carrie L
机构信息
Division of Human Genetics, Cincinnati Children's Hospital Medical, Cincinnati, Ohio, USA.
Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio, USA.
出版信息
J Genet Couns. 2025 Jun;34(3):e70049. doi: 10.1002/jgc4.70049.
Questionnaires are one of the most common tools for collecting data in genetic counseling research and practice. In this manuscript, we present an overview of survey methods in the context of genetic counseling research. Approaches for administering surveys, designing good questions, and identifying study samples are addressed. We also discuss rigorous approaches for designing, validating, and implementing questionnaires that are inclusive and reliable. The information and considerations in this manuscript will empower researchers to develop, pretest, validate, and implement surveys in diverse settings and enhance the rigor of genetic counseling research.
问卷是遗传咨询研究和实践中最常用的数据收集工具之一。在本手稿中，我们概述了遗传咨询研究背景下的调查方法。文中讨论了进行调查的方法、设计优质问题以及确定研究样本的方法。我们还探讨了设计、验证和实施具有包容性和可靠性的问卷的严谨方法。本手稿中的信息和注意事项将使研究人员能够在不同环境中开发、预测试、验证和实施调查，并提高遗传咨询研究的严谨性。
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