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低收入和中等收入国家支持包容性残疾决策的证据来源、途径和流程:一项范围综述

Sources of evidence, pathways, and processes to support disability-inclusive decision-making in low- and middle-income countries: A scoping review.

作者信息

Useh Ebruphiyo Ruth, Trafford Zara, Changole Prince, Hunt Xanthe

机构信息

Institute for Life Course Health Research, Department of Global Health, Stellenbosch University, Cape Town, Western Cape, South Africa.

Africa Health Research Institute (AHRI), Somkhele, KwaZulu-Natal, South Africa.

出版信息

PLOS Glob Public Health. 2025 May 12;5(5):e0004555. doi: 10.1371/journal.pgph.0004555. eCollection 2025.

Abstract

Widespread failure to sufficiently account for disability in policies and programming across sectors limits the inclusion of people with disabilities in global health and development strategies. These oversights are especially marked in low- and middle-income countries (LMICs), where 80% of the world's 1.3 billion people with disabilities reside. To bridge disability policy and programming gaps, it is important to first understand how key categories of decision-makers think about disability in their work, including which sources of evidence, processes, and pathways they rely on to make policy and programming decisions about disability, and what influences (aside from evidence) shape their decision-making. To address these issues, we conducted a scoping review of the literature concerning the use of evidence in governmental and non-governmental decision-making around disability-inclusion in LMICs. We systematically searched databases of peer-reviewed literature and used thorough hand searches to gather grey literature. Documents were eligible if they focused on key governmental and non-governmental stakeholders; disability-inclusive or disability-related decision-making in mainstream or targeted planning, policy-making, programming, or evaluations; and were based on data from LMICs. All literature was double screened and extracted according to a standardised extraction sheet by four reviewers, working in pairs. We included 16 papers, with sources of evidence cited being highly variable and encompassing both empirical and experiential evidence, while barriers and facilitators to using evidence varied by evidence source. Outside of evidence, notable influences on decision-making included government legislation, power dynamics and involvement, stakeholder relationships, the local landscape, funding, and attitudes towards disability. This work highlights the barriers to, and enablers of, evidence utilisation in relation to disability, which can be targeted with intervention and advocacy. Moreover, this review suggests that supporting evidence-based decision-making in relation to disability in LMICs necessitates engagement with varied framings of evidence and influences on decision-making outside of evidence.

摘要

各部门政策和规划中普遍未能充分考虑残疾因素,这限制了残疾人被纳入全球卫生与发展战略。这些疏漏在低收入和中等收入国家(LMICs)尤为明显,全球13亿残疾人中有80%生活在这些国家。为弥合残疾政策与规划差距,首先要了解各类关键决策者在工作中如何看待残疾问题,包括他们在做出有关残疾的政策和规划决策时所依赖的证据来源、流程和途径,以及(除证据外)哪些因素影响了他们的决策。为解决这些问题,我们对有关低收入和中等收入国家在将残疾问题纳入考量的政府和非政府决策中证据使用情况的文献进行了范围界定审查。我们系统地搜索了同行评审文献数据库,并通过全面的手工检索收集灰色文献。若文献聚焦于关键政府和非政府利益相关者;主流或针对性规划、政策制定、项目规划或评估中的残疾包容或与残疾相关的决策;且基于低收入和中等收入国家的数据,则该文献符合要求。所有文献由四名评审员两两一组根据标准化提取表进行双重筛选和提取。我们纳入了16篇论文,所引用的证据来源高度多样,包括实证证据和经验证据,而使用证据的障碍和促进因素因证据来源而异。除证据外,对决策有显著影响的因素包括政府立法、权力动态与参与、利益相关者关系、当地情况、资金以及对残疾的态度。这项工作凸显了与残疾问题相关的证据利用的障碍和促进因素,可通过干预和宣传加以应对。此外,本综述表明,要在低收入和中等收入国家支持与残疾问题相关的循证决策,就必须涉及多种证据框架以及证据之外对决策的影响因素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd63/12068629/13a114a9b161/pgph.0004555.g001.jpg

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