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[重度精神疾病患者的需求]

[Needs of people with severe mental illness].

作者信息

Breilmann Johanna, Allgöwer Andreas, Kilian Reinhold, Gühne Uta, Riedel-Heller Steffi G, Hasan Alkomiet, Becker Thomas, Falkai Peter, Ajayi Klemens, Brieger Peter, Frasch Karel, Halms Theresa, Heres Stephan, Jäger Markus, Küthmann Andreas, Putzhammer Albert, Schneeweiß Bertram, Schwarz Michael, Kösters Markus

机构信息

Klinik für Psychiatrie und Psychotherapie II, Universität Ulm, BKH Günzburg, Lindenallee 2, 89312, Günzburg, Deutschland.

Institut für Epidemiologie und Med. Biometrie, Universität Ulm, Ulm, Deutschland.

出版信息

Nervenarzt. 2025 May 19. doi: 10.1007/s00115-025-01835-5.

DOI:10.1007/s00115-025-01835-5
PMID:40387900
Abstract

BACKGROUND

Due to illness-related functional limitations, a significant proportion of individuals with severe mental illness are dependent on external assistance to navigate their daily lives and achieve an optimal level of independence and wellbeing.

OBJECTIVES

The present study sought to investigate the needs, the coverage of needs and the influencing factors among people with severe mental illness in Germany.

METHODS

The study included patients diagnosed with severe mental illness. The met and unmet needs, as well as the potential influencing factors, were collected using Camberwell Assessment of Need (CAN) and Client Sociodemographic and Service Receipt Inventory (CSSRI) and subsequently analysed descriptively and exploratively.

RESULTS

The mean number of reported needs was 6.4, with an average of 40.6% of these needs being met. The vast majority of patients (98%) require professional support, which is, from their perspective, inadequate (9-86% depending on the area concerned). Additionally, many patients also receive support from relatives (7-57% depending on the area concerned). The diagnosis, age, functioning, household income, and housing situation have an influence on the number and coverage of needs.

CONCLUSIONS

The findings indicate that patients have diverse and complex needs, which are not fully met. Notably, the support provided by professional services is perceived as inadequate.

摘要

背景

由于与疾病相关的功能限制,相当一部分重度精神疾病患者在日常生活中依赖外部援助,以实现最佳的独立水平和幸福感。

目的

本研究旨在调查德国重度精神疾病患者的需求、需求满足情况及影响因素。

方法

该研究纳入了被诊断为重度精神疾病的患者。使用坎伯韦尔需求评估(CAN)和服务对象社会人口学及服务接受情况清单(CSSRI)收集已满足和未满足的需求以及潜在影响因素,随后进行描述性和探索性分析。

结果

报告的需求平均数量为6.4项,其中平均40.6%的需求得到满足。绝大多数患者(98%)需要专业支持,但从他们的角度来看,这种支持并不充分(根据相关领域不同,比例在9%至86%之间)。此外,许多患者还得到亲属的支持(根据相关领域不同,比例在7%至57%之间)。诊断、年龄、功能状况、家庭收入和住房情况对需求的数量和满足情况有影响。

结论

研究结果表明,患者有多样且复杂的需求,但这些需求未得到充分满足。值得注意的是,专业服务提供的支持被认为是不足的。

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本文引用的文献

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Reliability of the Term "Serious Mental Illness": A Systematic Review.“严重精神疾病”术语的可靠性:系统评价。
Psychiatr Serv. 2022 Nov 1;73(11):1255-1262. doi: 10.1176/appi.ps.202100661. Epub 2022 Jul 27.
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Resilience in severe mental disorders: correlations to clinical measures and quality of life in hospitalized patients with major depression, bipolar disorder, and schizophrenia.严重精神障碍的韧性:与住院的重性抑郁症、双相情感障碍和精神分裂症患者的临床指标和生活质量的相关性。
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Changes in German Mental Health Care by Implementing a Global Treatment Budget-A Mixed-Method Process Evaluation Study.
通过实施全球治疗预算对德国精神卫生保健的影响——一项混合方法的过程评估研究
Front Psychiatry. 2020 May 25;11:426. doi: 10.3389/fpsyt.2020.00426. eCollection 2020.
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Does one size really fit all? The effectiveness of a non-diagnosis-specific integrated mental health care program in Germany in a prospective, parallel-group controlled multi-centre trial.一种方案真的适用于所有人吗?德国一项非特定诊断的综合心理健康护理项目在前瞻性平行组对照多中心试验中的有效性。
BMC Psychiatry. 2017 Aug 1;17(1):283. doi: 10.1186/s12888-017-1441-9.
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Evaluation of needs among patients with severe mental illness. A community study.重度精神疾病患者的需求评估。一项社区研究。
Actas Esp Psiquiatr. 2013 Mar-Apr;41(2):115-21. Epub 2013 Mar 1.
6
[A needs-oriented discharge planning intervention for high utilisers of psychiatric services: quality of the implementation and opportunities for improvement].[针对精神科服务高利用率患者的需求导向型出院计划干预措施:实施质量与改进机会]
Psychiatr Prax. 2013 Jul;40(5):271-7. doi: 10.1055/s-0032-1333036. Epub 2013 Mar 27.
7
Patients' and carers' perception of needs in a Polish sample.患者和照护者对波兰样本需求的认知。
Int J Soc Psychiatry. 2014 Mar;60(2):178-84. doi: 10.1177/0020764013479268. Epub 2013 Mar 20.
8
The dilemma of insight into illness in schizophrenia: self- and expert-rated insight and quality of life.精神分裂症中对疾病洞察的困境:自我评定与专家评定的洞察力及生活质量
Eur Arch Psychiatry Clin Neurosci. 2008 Apr;258(3):152-9. doi: 10.1007/s00406-007-0768-5.
9
[Needs for care of former long-stay-patients living outside of the psychiatric hospital].[对居住在精神病院外的 former long-stay-patients 的护理需求] (注:“former long-stay-patients”不太明确准确意思,可能是“ former long - term patients”即“ former long - stay patients”,长期住院患者,此处按字面翻译存疑)
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