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提供支持:对原住民医疗专业人员通过医院治疗为癌症患者提供支持的经历进行的参与式探索。

Holding space: a participatory exploration of first nations health professionals' experiences supporting cancer patients through hospital-based treatment.

作者信息

Anderson Kate, Hewlett Nicole, Elder-Robinson Elaina, Garvey Gail, Murray Rebecca, Chatfield Bonnie, Fletcher Lisa, Noble Catherine, Howard Kirsten

机构信息

Yardhura Walani Centre, Australian National University, Canberra, Australia.

Centre of Alcohol Policy Research, La Trobe University, Melbourne, Australia.

出版信息

Support Care Cancer. 2025 May 21;33(6):489. doi: 10.1007/s00520-025-09524-4.

Abstract

BACKGROUND

Colonial mechanisms continue to inflict trauma on Aboriginal and Torres Strait Islander peoples, the First Nations peoples of Australia. Consequence of this trauma is a disproportionately high rate of cancer mortality experienced among First Nations peoples and inequities in access to cancer services that are culturally responsive. There is a critical need for cancer care that supports First Nations peoples' holistic health and wellbeing. Engagement with First Nations health staff is a known element of culturally safe healthcare, however the experiences of and challenges facing First Nations staff working in cancer care are unclear.

METHOD

Conducted as part of the What Matters to Adults Implementation (WM2A-Implementation) study, this paper presents the findings of a participatory approach to explore the experiences of four First Nations Health Professionals (FNHPs) providing holistic cancer care for First Nations peoples within cancer services located in public hospitals. Ten Yarning Circles were conducted by a First Nations researcher over a 12-month period. All were transcribed and a Knowledge Synthesis method employed a reflexive thematic analysis approach. Meaning making. FNHPs shared their experiences of working in a complex, highly pressured, and sometimes adverse space. FNHPs worked to support and advocate for their patients, create culturally safe spaces, and support and guide colleagues to the provision of culturally safe, patient-centred cancer care. Our knowledge synthesis revealed six intersecting themes that encapsulate their experiences: holding space; advocacy for patients; incorporating First Nations ways; serving your community; being everything to everyone; and the stigma of the role.

DISCUSSION

These findings have implications for guiding cancer services to create an environment where First Nations staff are respected and given adequate resources, space, and support to deliver culturally grounded and supportive care to First Nations patients and their families. Specifically, services need to recognise the value of FNHPs in patient-centred care; balance this value with the burden on FNHPs; foster greater inclusion of First Nations culture and knowledges in mainstream healthcare; and actively focus on reducing racism and stigma facing FNHPs.

摘要

背景

殖民机制持续给澳大利亚原住民及托雷斯海峡岛民(澳大利亚的第一民族)带来创伤。这种创伤导致第一民族人群的癌症死亡率极高,且在获得具有文化适应性的癌症服务方面存在不公平现象。迫切需要能够支持第一民族人群整体健康和福祉的癌症护理。与第一民族医护人员合作是文化安全医疗保健的一个已知要素,然而,在癌症护理领域工作的第一民族工作人员的经历和面临的挑战尚不清楚。

方法

作为成人重要事项实施(WM2A - 实施)研究的一部分,本文介绍了一种参与式方法的研究结果,该方法旨在探索四名第一民族健康专业人员(FNHPs)在公立医院的癌症服务中为第一民族人群提供整体癌症护理的经历。一名第一民族研究人员在12个月内组织了十次围坐交流圈活动。所有活动都进行了转录,并采用知识综合方法进行反思性主题分析。意义建构。FNHPs分享了他们在复杂、压力极大且有时不利的环境中工作的经历。FNHPs努力为患者提供支持和倡导,营造文化安全的空间,并支持和指导同事提供文化安全、以患者为中心的癌症护理。我们的知识综合揭示了六个相互交织的主题,概括了他们的经历:留出空间;为患者发声;融入第一民族方式;服务社区;身兼数职;以及角色的耻辱感。

讨论

这些发现对于指导癌症服务机构营造一个尊重第一民族工作人员并为其提供足够资源、空间和支持的环境具有重要意义,以便为第一民族患者及其家庭提供基于文化且具有支持性的护理。具体而言,服务机构需要认识到FNHPs在以患者为中心的护理中的价值;在这种价值与FNHPs的负担之间取得平衡;促进第一民族文化和知识在主流医疗保健中的更大融入;并积极致力于减少FNHPs所面临的种族主义和耻辱感。

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Racism in healthcare: a scoping review.医疗保健中的种族主义:范围综述。
BMC Public Health. 2022 May 16;22(1):988. doi: 10.1186/s12889-022-13122-y.

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