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依从性标签:理解“诊断”不依从行为的起源、局限性及伦理挑战。

Adherence Labeling: Understanding the Origins, Limitations, and Ethical Challenges of "Diagnosing" Nonadherence.

作者信息

Beltrán Sourik, Cronholm Peter F, Bartels Stephen J

机构信息

Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts

The Mongan Institute, Massachusetts General Hospital, Boston, Massachusetts.

出版信息

Ann Fam Med. 2025 May 27;23(3):255-261. doi: 10.1370/afm.240358.

DOI:10.1370/afm.240358
PMID:40425480
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12120160/
Abstract

Promoting adherence to medical recommendations remains one of the oldest yet most persistent challenges of modern clinical practice. Although increasingly sympathetic to structural forces that affect health behavior, standard models frequently conceptualize nonadherence as a phenomenon of patient behavior, a self-evident quality belonging to patients that is responsible for a myriad of undesired outcomes. We contend, however, that this approach not only fails to consider the role of the clinician in the concept's origins in clinical encounters, but also has facilitated the use of adherence terms (eg, nonadherent, noncompliant, treatment resistant) as pejorative social labels to the detriment of the physician-patient relationship. Used without care, such terminology can alter the meaning assigned to patients' behaviors so that structural barriers to care such as poverty and systemic racism are reframed as problems of poor attitude or effort. This article explores the functions of adherence terms as social labels by reviewing their underlying logic in clinical settings and outlining pitfalls in the pathologization of nonadherence in research and practice. We propose the concept of adherence labeling-the assessment, classification, and dissemination of clinicians' perceptions of patients' adherence through social labels-as an alternative model to understand how adherence terms may inadvertently obstruct the care of marginalized patients.

摘要

促进对医学建议的依从性仍然是现代临床实践中最古老且最持久的挑战之一。尽管越来越多地关注影响健康行为的结构因素,但标准模型通常将不依从概念化为患者行为现象,这是患者自身显而易见的特质,会导致无数不良后果。然而,我们认为,这种方法不仅没有考虑临床医生在临床诊疗过程中该概念起源方面所起的作用,还促使人们将依从性术语(如不依从、不顺从、治疗抵抗)用作贬损性的社会标签,损害了医患关系。如果不加谨慎使用,此类术语会改变赋予患者行为的含义,以至于将贫困和系统性种族主义等医疗保健的结构性障碍重新界定为态度不佳或努力不够的问题。本文通过审视依从性术语在临床环境中的潜在逻辑,并概述研究与实践中不依从病理化的陷阱,探讨了依从性术语作为社会标签的功能。我们提出依从性标签这一概念——即通过社会标签对临床医生对患者依从性的认知进行评估、分类和传播——作为一种替代模型,以理解依从性术语可能如何无意地阻碍对边缘化患者的治疗。

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本文引用的文献

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The Noncompliant Patient.不依从的患者。
Methodist Debakey Cardiovasc J. 2022 Dec 6;18(5):81-84. doi: 10.14797/mdcvj.1166. eCollection 2022.
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Effect of Nurse-Led Counseling on Maintenance of Healthy Lifestyle Among Outpatients Receiving Antipsychotics: Clinical Case Reports.护士主导的咨询对接受抗精神病药物治疗的门诊患者保持健康生活方式的影响:临床病例报告
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A genome-wide association study on adherence to low-carbohydrate diets in Japanese.基于日本人群的针对低碳水化合物饮食依从性的全基因组关联研究
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Hypertension. 2022 Jan;79(1):12-23. doi: 10.1161/HYPERTENSIONAHA.121.17596. Epub 2021 Nov 5.
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Associations of Race, Insurance, and Zip Code-Level Income with Nonadherence Diagnoses in Primary and Specialty Diabetes Care.种族、保险和邮政编码收入与初级和专科糖尿病护理中不遵医嘱诊断的关联。
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Discrimination and Medical Mistrust in a Racially and Ethnically Diverse Sample of California Adults.加利福尼亚州不同种族和民族的成年人样本中的歧视和医疗不信任。
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Cost-Related Nonadherence and Mortality in Patients With Chronic Disease: A Multiyear Investigation, National Health Interview Survey, 2000-2014.慢性病患者的费用相关不依从与死亡率:一项多年度研究,2000-2014 年全国健康访谈调查。
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Social Risk Factors for Medication Nonadherence: Findings from the CARDIA Study.社会风险因素与药物治疗不依从:来自 CARDIA 研究的结果。
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Unconscious Bias and the Diagnosis of Disruptive Behavior Disorders and ADHD in African American and Hispanic Youth.无意识偏见与非裔美国人和西班牙裔青少年破坏性行为障碍及注意力缺陷多动障碍的诊断
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