Rosenbaum Peter L, Imms Christine, Miller Laura, Hughes Debra, Cross Andrea
Department of Paediatrics, McMaster University, Hamilton, Canada.
Apex Australia Chair of Neurodevelopment and Disability, Department of Paediatrics, The University of Melbourne, Parkville, Australia.
Disabil Rehabil. 2025 May;47(10):2682-2692. doi: 10.1080/09638288.2024.2394647. Epub 2024 Aug 26.
A powerful aphorism states: "If I hadn't believed it, I wouldn't have seen it!" This challenging notion reminds us how strongly we are influenced by prevailing ideas, and how we interpret things according to current fashions and teachings.
In this paper we present and discuss contemporary perspectives concerning childhood-onset disability and the evolving nature of how people are thinking and acting. We illustrate these ideas by reminding readers of how we have all traditionally been trained and acculturated to think about many dimensions of neurodevelopmental disability ("What?"); reflect on the impact of these ways of thinking in terms of what we have conventionally "seen" and done ("So What?"); and contrast those traditions with contemporary concepts that we believe or know impact the field ("Now What?").
Many of the concepts discussed here will be familiar to readers. In taking this analytically critical perspective we aim to illustrate that by weaving these individual threads together we are able to create a coherent fabric that can serve children with childhood-onset NDD, their families, service providers, the community, and policy-makers. We do not purport to offer a comprehensive view of the whole field.
We encourage readers to consider the integration of these new ways of thinking and acting in our still-evolving field of "childhood-onset disability".
有一句有力的格言说道：“若我未曾相信，便不会看见！” 这一颇具挑战性的观点提醒我们，主流观念对我们的影响有多么强大，以及我们如何根据当下的潮流和教义来解读事物。
在本文中，我们呈现并讨论了关于儿童期残疾以及人们思维和行为演变本质的当代观点。我们通过提醒读者我们传统上是如何接受训练和文化熏陶来思考神经发育障碍的诸多维度（“是什么？”）；反思这些思维方式在我们传统上 “看到” 和所做之事方面的影响（“那又怎样？”）；并将这些传统观念与我们认为或知道会影响该领域的当代概念进行对比（“现在该怎么做？”）来阐释这些观点。
这里讨论的许多概念读者会很熟悉。从这种批判性分析的角度出发，我们旨在说明，通过将这些单独的线索编织在一起，我们能够创造出一种连贯的架构，为患有儿童期神经发育障碍的儿童、他们的家庭、服务提供者、社区和政策制定者提供帮助。我们并非旨在对整个领域提供全面的观点。
我们鼓励读者考虑在我们仍在不断发展的 “儿童期残疾” 领域中整合这些新的思维和行为方式。
