Vaghardoost Reza, Latifi Noor Ahmad, Abbaszadeh Abolfazl, Roustaei Shahram, Tavakoli Mahdiye
Department of Plastic and Reconstructive Surgery, School of medicine, Iran university of medical sciences, Tehran, Iran.
PhD in Speech therapy, Hazrat Fatemeh Hospital, Iran University of Medical Sciences, Tehran, Iran.
World J Plast Surg. 2025;14(1):28-32. doi: 10.61186/wjps.14.1.28.
Policy makers, researchers and health care professionals are faced daily with the challenge of how to prioritize their activities and actions in different areas of their responsibilities. In the field of health, their decisions are often influenced by the reality of population needs on the one hand and limited resources on the other. The correctness of decisions is completely dependent on the quality and accuracy of information from the target population. Patient registries, have for decades been an important source of data needed to evaluate clinical practice, evaluate health service delivery, and assess policy implications at the local, regional, national, and international levels.
Based on the research objectives, fourteen registration forms consisting of 790 variables were designed. The data of cleft lip and palate patients who underwent surgery in Hazrat Fatemeh Hospital during the year 2022, in Tehran, Iran, were collected and entered into the registration system, and then the amount of recorded data was assessed based on the research objectives.
Only 28% of the data of cleft lip and palate patients were recorded in the clinical files during their hospital stay, and 72% of the required data are not recorded. However, the accuracy of the recorded data and their validity has not been evaluated.
In order to obtain the necessary data for the designed objectives, the data recorded in the hospital are not sufficient and accurate, and a registry is needed to record accurately the data of cleft lip and palate patients.
政策制定者、研究人员和医疗保健专业人员每天都面临着如何在其职责的不同领域中对活动和行动进行优先排序的挑战。在卫生领域，他们的决策一方面常常受到人群需求现实的影响，另一方面受到资源有限的影响。决策的正确性完全取决于来自目标人群信息的质量和准确性。几十年来，患者登记册一直是评估临床实践、评估卫生服务提供情况以及在地方、区域、国家和国际层面评估政策影响所需数据的重要来源。
根据研究目标，设计了由790个变量组成的14份登记表。收集了2022年在伊朗德黑兰哈兹拉特·法特梅医院接受手术的唇腭裂患者的数据，并将其录入登记系统，然后根据研究目标评估记录的数据量。
唇腭裂患者住院期间，临床档案中仅记录了28%的数据，72%的所需数据未被记录。然而，所记录数据的准确性及其有效性尚未得到评估。
为了获取实现既定目标所需的数据，医院记录的数据既不充分也不准确，需要一个登记册来准确记录唇腭裂患者的数据。
