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“不独自做决定”支持因纽特人健康决策的实地测试:以aajiiqatigiingniq为指导的混合方法研究的共同生产

A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq.

作者信息

Jull Janet, Fairman Kimberly, Akulukjuk Aimo, Adelaja Felicia, Akeeagok Parniga, Akpalialuk Tina, Davidee Ida, Daybutch Mackenzie, Greene Treena, Hesmer Brittany, Kipsigak Louisa, Koonoo Theresa, Morrisey Kelly, Nungnik Rachel, Roberts Carolyn, Thomas Jemimah, Uniuqsaraq Meeka, Zehr Malaya

机构信息

Department of Health Sciences, Carleton University, Ottawa, Ontario, Canada.

Faculty of Health Sciences, School of Rehabilitation Therapy, Queen's University, Kingston, Ontario, Canada.

出版信息

Int J Circumpolar Health. 2025 Dec;84(1):2513726. doi: 10.1080/22423982.2025.2513726. Epub 2025 Jun 5.

Abstract

Shared decision-making supports person-centred care. Our team of Inuit-led and/or -focused organizations and researchers field-tested a strategy called Not Deciding Alone to support health decision-making. Guided by aajiiqatigiingniq, a principle of collective decision-making and consensus-building, we co-produced a mixed-methods study to: (1) train Qikiqtani region community health representatives (CHRs) with a workshop, (2) develop a radio show and survey, and (3) assess the radio show with Inuit community members in the health system. We evaluated participant experiences using forms, case studies, and an online survey. The workshop was delivered to 13 CHRs; seven (54%) provided evaluation data. All (100%) reported positive experiences with the content, activities, and facilitation. One (14%) said the workshop was too short; four (57%) agreed there was enough discussion time. Six (86%) reported new learning. Three radio show events were held with 33 survey respondents, the majority women ( = 25, 76%). Most found the show informative ( = 29, 88%) and helpful for future decision-making ( = 27, 82%), and said it would improve their confidence ( = 27, 82%). Not Deciding Alone was found to be an acceptable, useful, and relevant strategy for supporting health decision-making among Inuit community members.

摘要

共同决策支持以患者为中心的护理。我们由因纽特人主导和/或关注因纽特人的组织及研究人员团队对一种名为“不独自做决定”的策略进行了实地测试,以支持健康决策。在集体决策和建立共识的原则“aajiiqatigiingniq”的指导下,我们共同开展了一项混合方法研究,目的是:(1)通过举办一个工作坊培训基吉塔尼地区的社区健康代表(CHR);(2)制作一档广播节目并开展一项调查;(3)让卫生系统中的因纽特社区成员对该广播节目进行评估。我们使用表格、案例研究和在线调查来评估参与者的体验。该工作坊面向13名社区健康代表开展;其中7人(54%)提供了评估数据。所有人(100%)都报告了对内容、活动和引导的积极体验。1人(14%)表示工作坊时间太短;4人(57%)认为讨论时间充足。6人(86%)报告有新的收获。举办了3期广播节目活动,有33名受访者参与调查,其中大多数是女性(n = 25,76%)。大多数人认为该节目信息丰富(n = 29,88%)且对未来决策有帮助(n = 27,82%),并表示这会增强他们的信心(n = 27,82%)。“不独自做决定”被认为是一种可接受、有用且相关的策略,有助于支持因纽特社区成员的健康决策。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/01d7/12143011/f786513b1ac9/ZICH_A_2513726_F0001_OC.jpg

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