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让社会利益相关者参与国家石棉公共卫生研究:意大利的经验。

Engaging Social Stakeholders in National Asbestos Research for Public Health: An Italian Experience.

作者信息

Marsili Daniela, Binazzi Alessandra, Marinaccio Alessandro, Mensi Carolina, Fazzo Lucia

机构信息

Environmental and Social Epidemiology Unit, Department of Environment and Health, Istituto Superiore di Sanità, Rome, Italy.

WHO Collaborating Centre for Environmental Health in Contaminated Sites, Rome, Italy.

出版信息

Ann Glob Health. 2025 Jun 5;91(1):25. doi: 10.5334/aogh.4717. eCollection 2025.

Abstract

Asbestos and its impacts on the population worldwide are threats to the environment and public health, striking both countries that have banned asbestos, such as Italy in 1992, and those that continue its use. In Italy, asbestos‑affected communities have experienced diverse progress in their involvement in prevention and asbestos risk management. Exploring social stakeholders' engagement in research projects on asbestos health impacts and discussing the benefits of the ongoing SEPRA project (Epidemiological Surveillance, Prevention and Research on Asbestos). A structured communication plan was implemented, including the selection of social stakeholders and their engagement during the project's lifetime; selection of research topics to characterize the participative initiatives and communication modality; and collection and analysis of inputs for enabling impacts. Sharing major issues of concern highlighted by social stakeholders, such as the recognition of all asbestos‑related diseases besides mesothelioma and non‑occupational asbestos exposures. The need to implement health surveillance plans in all the regions of the country, including a national plan addressing the psychological support to patients and their families, and to extend social welfare to people affected by occupational and non‑occupational asbestos‑related diseases has been highlighted. : Social stakeholders' engagement in research activities through structured interactions and trusted relationships allowed us to share information, needs and recommendations for implementing effective actions in public health. Researchers committed to asbestos research at a national scale should closely collaborate with stakeholders through structured communication, considering their diversified fields of experience, critical thinking and inputs. Giving recognition to social stakeholders of their role and expertise and providing them appropriate tools to interact with the relevant authorities and the asbestos‑affected communities are key for effectively advancing in inclusive processes and health equity.

摘要

石棉及其对全球人口的影响对环境和公众健康构成威胁,无论是已禁止使用石棉的国家(如1992年的意大利),还是仍在使用石棉的国家都受到影响。在意大利,受石棉影响的社区在参与预防和石棉风险管理方面取得了不同程度的进展。探讨社会利益相关者对石棉健康影响研究项目的参与情况,并讨论正在进行的SEPRA项目(石棉的流行病学监测、预防和研究)的益处。实施了一项结构化沟通计划,包括选择社会利益相关者及其在项目期间的参与;选择研究主题以描述参与性举措和沟通方式;以及收集和分析相关意见以实现影响。分享社会利益相关者强调的主要关切问题,如除间皮瘤外所有与石棉相关疾病的认定以及非职业性石棉暴露。强调了在该国所有地区实施健康监测计划的必要性,包括一项为患者及其家庭提供心理支持的国家计划,以及将社会福利扩展至受职业性和非职业性石棉相关疾病影响人群。社会利益相关者通过结构化互动和可信赖的关系参与研究活动,使我们能够分享信息、需求以及关于在公共卫生领域采取有效行动的建议。致力于全国范围内石棉研究的研究人员应通过结构化沟通与利益相关者密切合作,考虑到他们多样化的经验领域、批判性思维和意见。认可社会利益相关者的作用和专业知识,并为他们提供与相关当局和受石棉影响社区互动的适当工具,是在包容性进程和健康公平方面有效推进的关键。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/697d/12143261/3ec8e7e5d668/agh-91-1-4717-g1.jpg

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