癫痫儿童的生活质量和疾病对家庭功能的影响。
The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning.
机构信息
Department of Nursing and Obstetrics, Division of Family and Pediatric Nursing, Wroclaw Medical University, Poland 1, 51-618 Wrocław, Poland.
Department of Nursing and Obstetrics, Division of Internal Medicine Nursing, Wroclaw Medical University, Poland 1, 51-618 Wrocław, Poland.
出版信息
Int J Environ Res Public Health. 2022 Feb 17;19(4):2277. doi: 10.3390/ijerph19042277.
UNLABELLED
Epilepsy is a neurological chronic disease, which negatively affects physical, psychological and social functioning of children and their families. The main objective of this study was to assess the quality of life (QoL) in children with diagnosed epilepsy and the impact of a child's disease on the functioning of the family.
METHOD
A cross-sectional survey involved a total of 103 legal guardians of children with diagnosed epilepsy. QoL was measured by PedsQL 4.0, with appropriate forms for specific age groups, the impact of a child's condition on the functioning of the family was measured by PedsQL 2.0 Family Impact Module, and the authors' own questionnaire was used to collect sociodemographic and medical data.
RESULTS
Subjects reported a decreased level of family daily activities (total score: 32.4 out of 100, SD = 26.5) and relationships (total score: 55.63 out of 100, SD = 24.03). QoL in children aged 5-7 years is lower by an average of 11.956 points as compared with children aged 2-4 years. Comorbidities had a significant impact ( < 0.05) on QoL in all domains. The overall QoL has reported a low score of 46.42 out of 100, respectively (SD ± 20.95), with the highest mean scores reported for the social functioning (total score: 49.4, SD = 27.3) and the physical functioning (total score: 49.4, SD = 28.4) and with the lowest mean score reported for the work/school functioning (total score: 42.3, SD = 27.8).
CONCLUSIONS
Child's epilepsy shows a considerable negative impact on the QoL of children and family functioning.
目的
评估确诊癫痫儿童的生活质量（QoL）及其疾病对家庭功能的影响。
方法
采用横断面调查，共纳入 103 名确诊癫痫儿童的法定监护人。使用 PedsQL 4.0 评估 QoL，针对特定年龄组有相应的形式，使用 PedsQL 2.0 家庭影响模块评估儿童疾病对家庭功能的影响，作者还使用自己的问卷收集社会人口学和医学数据。
结果
研究对象报告家庭日常活动（总分：100 分中得 32.4 分，标准差=26.5）和关系（总分：100 分中得 55.63 分，标准差=24.03）的水平下降。5-7 岁儿童的 QoL 比 2-4 岁儿童平均低 11.956 分。合并症对所有领域的 QoL 均有显著影响（<0.05）。总体 QoL 评分为 46.42 分（标准差±20.95），社会功能（总分：49.4，标准差=27.3）和身体功能（总分：49.4，标准差=28.4）的平均得分最高，工作/学校功能（总分：42.3，标准差=27.8）的平均得分最低。
结论
儿童癫痫对儿童 QoL 和家庭功能有显著负面影响。
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