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将智力和其他认知障碍者纳入研究与评估团队:实证知识库的范围综述

Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base.

作者信息

Ghaderi Golnaz, Milley Peter, Lysaght Rosemary, Cobigo Virginie

机构信息

Faculty of Social Sciences, University of Ottawa, Ottawa, ON, Canada.

Faculty of Education, University of Ottawa, Ottawa, ON, Canada.

出版信息

J Intellect Disabil. 2023 Jul 18:17446295231189912. doi: 10.1177/17446295231189912.

Abstract

We conducted a rapid scoping review of empirical studies to identify how persons with intellectual and other cognitive disabilities have been engaged as active members of research and evaluation teams. We conducted a literature search using a systematic method that accessed peer reviewed studies in relevant library databases and all major evaluation journals. The search resulted in 6,624 potential articles, of which 32 met the inclusion criteria for this study. The findings address three categories of interest: 1) methodological underpinnings and practical justifications for using inclusive approaches, 2) different inclusion processes, and 3) reflections by researchers with and without intellectual and other cognitive disabilities. Findings provide conceptual and practical insights for researchers and evaluators when designing inclusive methods involving persons with intellectual and other cognitive disabilities. Gaps in inclusive research and evaluation are discussed and suggestions for future research are proposed.

摘要

我们对实证研究进行了快速范围综述,以确定智力和其他认知障碍者如何作为研究和评估团队的积极成员参与其中。我们采用系统方法进行文献检索,检索了相关图书馆数据库中的同行评审研究以及所有主要评估期刊。检索结果得到6624篇潜在文章,其中32篇符合本研究的纳入标准。研究结果涉及三类关注点:1)使用包容性方法的方法学基础和实际理由;2)不同的纳入过程;3)有和没有智力及其他认知障碍的研究人员的反思。研究结果为研究人员和评估人员在设计涉及智力和其他认知障碍者的包容性方法时提供了概念和实践见解。文中讨论了包容性研究和评估中的差距,并提出了未来研究的建议。

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