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患者在临床实践中对心房颤动及合并症管理的体验:一项泛欧洲定性描述性访谈研究

Patients' experiences of atrial fibrillation and comorbidity management in clinical practice: a pan-European qualitative descriptive interview study.

作者信息

Lee Geraldine, Baker Edward, Heidbuchel Hein, Önder Rana, Mulder Bart A, Dabrowski Rafal, Tzeis Stylianos, Karanikas Stavros, Jauregui-Abularach Miguel, Merino Daniel, Desteghe Lien

机构信息

Nursing & Midwifery, University College Cork, Cork, Ireland

Emergency Department, King's College Hospital NHS Foundation Trust, London, UK.

出版信息

BMJ Open. 2025 Jun 16;15(6):e094839. doi: 10.1136/bmjopen-2024-094839.

Abstract

OBJECTIVE

The objective is to explore patients' perceptions on the management of atrial fibrillation (AF) and associated comorbidities.

DESIGN

A descriptive qualitative study involving in-depth individual interviews, analysed using Braun and Clarke's approach to Reflexive Thematic Analysis.

SETTING

Cardiology departments in teaching hospitals in five geographically diverse European countries-Belgium, Greece, Poland, Spain and the Netherlands.

PARTICIPANTS

30 adults aged 65 years or older, diagnosed with AF, with two or more confirmed comorbidities were interviewed.

RESULTS

The average age was 73 years, 37% were women and the most common comorbidity was hypertension (n=26, 87%), followed by hypercholesterolaemia (n=12, 40%), obesity (n=10, 33%), hypothyroidism (n=9, 30%) and diabetes (n=7, 23%). Three main themes were identified: (1) navigating the diagnosis path and adapting to life with AF, (2) normalising symptoms and treatment burden and (3) striving to build a therapeutic relationship.Respondents had some knowledge about the relationship between comorbidities and AF but lacked understanding of how these comorbidities related to AF. Participants raised concerns regarding their medications, especially anticoagulants, with a desire to be given more information about them. Participants were motivated to make lifestyle adjustments but reported a lack of education and advice on how to implement and maintain these lifestyle changes. Overall, participants were very satisfied with their cardiology/AF teams, and they emphasised the importance of a person-centred approach. There was a perceived disjointedness to healthcare systems, with some reporting multiple appointments at different locations, leading to participants being frustrated and highlighting the lack of integrated care.

CONCLUSIONS

In-depth interviews provided an excellent platform to explore the perceptions and experiences of patients living with AF and associated comorbidities and highlighted the lack of an integrated approach to multimorbid AF management.

摘要

目的

探讨患者对心房颤动(AF)及相关合并症管理的看法。

设计

一项描述性定性研究,采用深入的个人访谈,并运用布劳恩和克拉克的反思性主题分析法进行分析。

地点

欧洲五个地理位置不同的国家(比利时、希腊、波兰、西班牙和荷兰)教学医院的心脏病科。

参与者

对30名65岁及以上、被诊断为AF且患有两种或更多确诊合并症的成年人进行了访谈。

结果

平均年龄为73岁,37%为女性,最常见的合并症是高血压(n = 26,87%),其次是高胆固醇血症(n = 12,40%)、肥胖症(n = 10,33%)、甲状腺功能减退症(n = 9,30%)和糖尿病(n = 7,23%)。确定了三个主要主题:(1)了解诊断过程并适应AF生活,(2)使症状和治疗负担正常化,(3)努力建立治疗关系。受访者对合并症与AF之间的关系有一定了解,但对这些合并症与AF的具体关联缺乏认识。参与者对其药物,尤其是抗凝剂表示担忧,希望获得更多相关信息。参与者有动力进行生活方式调整,但表示缺乏关于如何实施和维持这些生活方式改变的教育和建议。总体而言,参与者对其心脏病科/AF治疗团队非常满意,并强调了以患者为中心方法的重要性。他们认为医疗保健系统存在脱节现象,一些人报告在不同地点进行多次预约,这让参与者感到沮丧,并凸显了缺乏综合护理的问题。

结论

深入访谈为探索AF及相关合并症患者的看法和经历提供了一个绝佳平台,并突出了多合并症AF管理缺乏综合方法的问题。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7dde/12314810/f9e64d83df5c/bmjopen-15-6-g001.jpg

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