Hinterbuchinger Barbara, Kaisler Raphaela E, Baumgartner Josef S, Friedrich Fabian, Litvan Zsuzsa, Trimmel Melanie, Hlavacek Karin, Popa Alina Ramya, Mossaheb Nilufar
Clinical Division of Social Psychiatry, Department of Psychiatry and Psychotherapy, Medical University of Vienna, Vienna, Austria.
Comprehensive Center for Clinical Neurosciences and Mental Health, Medical University of Vienna, Vienna, Austria.
Front Psychiatry. 2025 Jun 2;16:1530093. doi: 10.3389/fpsyt.2025.1530093. eCollection 2025.
Although in psychiatric research prevention and participation are both considered increasingly important, there are few participatory research projects with individuals with psychosis high risk states (ultra-high risk for psychosis; UHR). The aim of this project was to reflect on UHR terminology, diagnostic and treatment guidelines and to identify and implement unmet needs together with people at UHR.
This project was designed co-creatively from the conceptual phase to the execution. The project team consisted of an equal number of mental health clinicians and co-researchers with lived UHR experience. Rules for collaboration were co-creatively developed within the group. Within 4 project workshops, project objectives and unmet needs were identified and prioritized. After setting up an action plan, project plans were implemented within the research group.
Unmet needs of co-researchers with lived UHR-experience included free access to information on psychosis high risk states, opportunities for personal exchange, and the creation of more public awareness and knowledge about UHR. Within the participatory research process, consensus on collaboration and objectives was achieved and heterogeneous perceptions towards the UHR concept and terminology were discussed.
The necessity of an adequate terminology for psychiatric conditions was deemed crucial by both medical professionals and co-researchers with lived UHR experience for facilitating a better understanding between psychiatrists and those affected. Heterogeneity of perception illustrates the necessity of addressing individual needs and utilising diverse terminology and explanatory models within mental health.
尽管在精神病学研究中，预防和参与都被认为越来越重要，但针对处于精神病高风险状态（精神病超高风险；UHR）的个体开展的参与式研究项目却很少。本项目的目的是反思UHR术语、诊断和治疗指南，并与处于UHR状态的人群共同识别和满足未被满足的需求。
本项目从概念阶段到执行阶段都是共同创造性设计的。项目团队由数量相等的心理健康临床医生和有UHR生活经历的共同研究者组成。合作规则在团队内部共同创造性地制定。在4次项目研讨会上，确定了项目目标和未被满足的需求并进行了优先级排序。制定行动计划后，在研究团队内部实施了项目计划。
有UHR生活经历的共同研究者未被满足的需求包括免费获取有关精神病高风险状态的信息、个人交流机会，以及提高公众对UHR的认识和了解。在参与式研究过程中，就合作和目标达成了共识，并讨论了对UHR概念和术语的不同看法。
医学专业人员和有UHR生活经历的共同研究者都认为，为精神疾病提供适当术语对于促进精神科医生与患者之间的更好理解至关重要。认知的异质性表明，在心理健康领域满足个体需求并使用多样化的术语和解释模型是必要的。
