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Co-producing research on psychosis: a scoping review on barriers, facilitators and outcomes.

作者信息

Jakobsson C E, Genovesi E, Afolayan A, Bella-Awusah T, Omobowale O, Buyanga M, Kakuma R, Ryan G K

机构信息

Department of Psychiatry, Sussex Partnership NHS Foundation Trust, Eastbourne, England, UK.

Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, England, UK.

出版信息

Int J Ment Health Syst. 2023 Aug 30;17(1):25. doi: 10.1186/s13033-023-00594-7.


DOI:10.1186/s13033-023-00594-7
PMID:37644476
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10466887/
Abstract

INTRODUCTION: Co-production is a collaborative approach to service user involvement in which users and researchers share power and responsibility in the research process. Although previous reviews have investigated co-production in mental health research, these do not typically focus on psychosis or severe mental health conditions. Meanwhile, people with psychosis may be under-represented in co-production efforts. This scoping review aims to explore the peer-reviewed literature to better understand the processes and terminology employed, as well as the barriers, facilitators, and outcomes of co-production in psychosis research. METHODS: Three databases were searched (MEDLINE, EMBASE, PsycINFO) using terms and headings related to psychosis and co-production. All titles, abstracts and full texts were independently double-screened. Disagreements were resolved by consensus. Original research articles reporting on processes and methods of co-production involving adults with psychosis as well as barriers, facilitators, and/or outcomes of co-production were included. Data was extracted using a standardised template and synthesised narratively. Joanna Briggs Institute and the AGREE Reporting Checklist were used for quality assessment. RESULTS: The search returned 1243 references. Fifteen studies were included: five qualitative, two cross-sectional, and eight descriptive studies. Most studies took place in the UK, and all reported user involvement in the research process; however, the amount and methods of involvement varied greatly. Although all studies were required to satisfy INVOLVE (2018) principles of co-production to be included, seven were missing several of the key features of co-production and often used different terms to describe their collaborative approaches. Commonly reported outcomes included improvements in mutual engagement as well as depth of understanding and exploration. Key barriers were power differentials between researchers and service users and stigma. Key facilitators were stakeholder buy-in and effective communication. CONCLUSIONS: The methodology, terminology and quality of the studies varied considerably; meanwhile, over-representation of UK studies suggests there may be even more heterogeneity in the global literature not captured by our review. This study makes recommendations for encouraging co-production and improving the reporting of co-produced research, while also identifying several limitations that could be improved upon for a more comprehensive review of the literature.

摘要

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本文引用的文献

[1]
How service users and carers understand, perceive, rephrase, and communicate about "depressive episode" and "schizophrenia" diagnoses: an international participatory research.

Soc Psychiatry Psychiatr Epidemiol. 2020-2-22

[2]
Co-producing Psychiatric Education with Service User Educators: a Collective Autobiographical Case Study of the Meaning, Ethics, and Importance of Payment.

Acad Psychiatry. 2019-12-23

[3]
Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers.

Health Expect. 2020-4

[4]
A Multicomponent eHealth Intervention for Family Carers for People Affected by Psychosis: A Coproduced Design and Build Study.

J Med Internet Res. 2019-8-6

[5]
The dark side of coproduction: do the costs outweigh the benefits for health research?

Health Res Policy Syst. 2019-3-28

[6]
Co-designing a virtual world with young people to deliver social cognition therapy in early psychosis.

Early Interv Psychiatry. 2020-2

[7]
Service user involvement in global mental health: what have we learned from recent research in low and middle-income countries?

Curr Opin Psychiatry. 2019-7

[8]
Implementing an intervention designed to enhance service user involvement in mental health care planning: a qualitative process evaluation.

Soc Psychiatry Psychiatr Epidemiol. 2018-9-28

[9]
A participatory approach to the development of a co-produced and co-delivered information programme for users of services and family members: the EOLAS programme (paper 1) - Corrigendum.

Ir J Psychol Med. 2017-3

[10]
Conceptualizing patient-reported outcome measures for use within two Danish psychiatric clinical registries: description of an iterative co-creation process between patients and healthcare professionals.

Nord J Psychiatry. 2018-8

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