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不仅仅是测量厘米数:美容性肢体延长结局指标的范围综述

Measuring more than just centimeters: a scoping review of outcome measures in cosmetic stature lengthening.

作者信息

Yalcinkaya Ali, Tirta Maria, Rahbek Ole, Jepsen Jette Frost, Rathleff Michael Skovdal, Iobst Christopher, Kold Søren

机构信息

Interdisciplinary Orthopaedics, Aalborg University Hospital, Aalborg, Denmark.

Department of Orthopaedic Surgery, Aalborg University Hospital, Aalborg, Denmark.

出版信息

J Orthop Surg Res. 2025 Jun 23;20(1):606. doi: 10.1186/s13018-025-06041-2.


DOI:10.1186/s13018-025-06041-2
PMID:40551229
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12183917/
Abstract

BACKGROUND: Cosmetic stature lengthening (CSL) is an elective orthopedic procedure performed to increase height. While clinical outcomes often define technical success, the broader effects on patients’ quality of life, functional recovery, and psychosocial well-being may be inadequately assessed. This review evaluates current outcome measures used in CSL studies in order to identify gaps in capturing patient-centered experiences and life impact outcomes. METHODS: Following the JBI methodology and PRISMA-ScR guidelines, a comprehensive literature search covering publications up to May 12, 2025, was conducted across MEDLINE, Embase, Cochrane Library, Web of Science, and Scopus. Studies focused on CSL with extractable outcome data were included. Outcomes were categorized using the Core Outcome Measures in Effectiveness Trials (COMET) taxonomy. RESULTS: Twenty studies met the inclusion criteria, reporting 410 outcomes grouped into 51 categories and 15 domains across four core areas: adverse events (3%), life impact (21%), physiological/clinical (75%), and resource use (1%). Only 25% of studies assessed quality of life, and while 55% measured patient satisfaction, most of these relied on unvalidated tools. Social functioning, an essential aspect of post-treatment well-being, was the least reported domain (15%). CONCLUSION: Outcome reporting in CSL is heavily skewed toward clinical metrics, with insufficient attention given to patient-centered measures such as quality of life, psychosocial well-being, and functional recovery. The lack of validated outcome measurement instruments impedes comparability across studies and limits evidence-based decision-making. Future research should prioritize standardized, validated patient-reported outcome measures to bridge the gap between technical success and meaningful patient experiences. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s13018-025-06041-2.

摘要

背景:美容性肢体延长术(CSL)是一种用于增加身高的选择性骨科手术。虽然临床结果常常定义技术上的成功,但对患者生活质量、功能恢复和心理社会幸福感的更广泛影响可能评估不足。本综述评估了CSL研究中目前使用的结果指标,以找出在捕捉以患者为中心的体验和生活影响结果方面的差距。 方法:按照JBI方法和PRISMA-ScR指南,在MEDLINE、Embase、Cochrane图书馆、科学网和Scopus上对截至2025年5月12日的出版物进行了全面的文献检索。纳入了聚焦于CSL且有可提取结果数据的研究。使用有效性试验核心结果指标(COMET)分类法对结果进行分类。 结果:20项研究符合纳入标准,报告了410项结果,分为51个类别和15个领域,分布在四个核心领域:不良事件(3%)、生活影响(21%)、生理/临床(75%)和资源利用(1%)。只有25%的研究评估了生活质量,虽然55%测量了患者满意度,但其中大多数依赖未经验证的工具。社会功能是治疗后幸福感的一个重要方面,是报告最少的领域(15%)。 结论:CSL的结果报告严重偏向临床指标,对以患者为中心的指标如生活质量、心理社会幸福感和功能恢复关注不足。缺乏经过验证的结果测量工具阻碍了各研究之间的可比性,并限制了基于证据的决策。未来的研究应优先采用标准化、经过验证的患者报告结果指标,以弥合技术成功与有意义的患者体验之间的差距。 补充信息:在线版本包含可在10.1186/s13018-025-06041-2获取的补充材料。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1f9f/12183917/8ed5dbfe6553/13018_2025_6041_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1f9f/12183917/f7ab7f70a0c6/13018_2025_6041_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1f9f/12183917/8ed5dbfe6553/13018_2025_6041_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1f9f/12183917/f7ab7f70a0c6/13018_2025_6041_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1f9f/12183917/8ed5dbfe6553/13018_2025_6041_Fig2_HTML.jpg

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本文引用的文献

[1]
Aesthetic lower limb lengthening techniques: a systematic review of efficacy, complications, and patient satisfaction.

J Orthop Surg Res. 2025-4-24

[2]
The psychosocial outcomes following cosmetic surgery are largely unknown: A systematic review.

J Plast Reconstr Aesthet Surg. 2025-5

[3]
Outcomes and outcome measurement instruments in lower-limb lengthening surgery: a scoping review to inform core outcome set development.

Acta Orthop. 2024-11-29

[4]
Stature seekers: Cosmetic limb lengthening in medical tourism a case report.

JPRAS Open. 2024-8-30

[5]
The challenge of using patient reported outcome measures in clinical practice: how do we get there?

J Patient Rep Outcomes. 2024-3-21

[6]
Core outcome set developers should consider and specify the level of granularity of outcome domains.

J Clin Epidemiol. 2024-5

[7]
Utilization of patient-reported outcome measures in plastic surgery clinical trials: A systematic review.

J Plast Reconstr Aesthet Surg. 2024-3

[8]
What outcomes have been reported on patients following open lower limb fracture, and how have they been measured?

Bone Joint Res. 2023-2-14

[9]
: An R package and Shiny app for producing PRISMA 2020-compliant flow diagrams, with interactivity for optimised digital transparency and Open Synthesis.

Campbell Syst Rev. 2022-3-27

[10]
What's New in Limb Lengthening and Deformity Correction.

J Bone Joint Surg Am. 2022-8-17

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