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管理功能性神经障碍:澳大利亚卫生专业人员的治疗建议。

Managing functional neurological disorder: treatment recommendations for health professionals in Australia.

作者信息

Lehn Alexander, Petrie Dharsha, Palmer David, Bradbury Cindy, Guest Rianna, Schuurs Alana, Lewis Jacinta, Madden Rebecca, McLeod Julia, Marsh Rodney, Slade Christine, Davis Jessica, Cheah Vince, Broughton Megan, Lagrand Tjerk J

机构信息

Department of Neurology, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.

Queensland University of Technology, Brisbane, Queensland, Australia.

出版信息

BMJ Neurol Open. 2025 May 29;7(1):e000970. doi: 10.1136/bmjno-2024-000970. eCollection 2025.

Abstract

Functional Neurological Disorder (FND) can present significant management challenges due to its sometimes-complex presentation and the historical stigma attached to this diagnosis. Recent advances have improved understanding and management of FND, emphasising the benefit of a multidisciplinary approach to management. The prognosis of FND varies but evidence-based treatments offer the potential of remission to many people for whom FND might otherwise cause long-term disability, and meaningful symptomatic and functional improvement for many more. Despite this, limited and inequitable access to treatment means that many people with FND in Australia continue to experience treatable disability due to the condition.Diagnosis: FND should be diagnosed based on positive signs rather than exclusion. This includes identifying inconsistencies and incongruencies in symptoms that differentiate them from other neurological conditions.Communication: The diagnosis of FND should be communicated to patients promptly and clearly upon diagnosis of the condition. Information provided should include the name of the condition, the basis on which the diagnosis has been made, key principles that can aid self-management, and shared planning of next steps in treatment or accessing treatment.Multidisciplinary Management: Across healthcare service models, treatment should involve a multidisciplinary team to address the multifaceted, and sometimes complex symptoms of FND.Role of General Practitioners (GPs): GPs are integral in the long-term management of FND, providing continuity of care, patient support and education, and facilitating access to specialist services. An informed GP can provide the patient with confidence and agency to be pro-active in their symptoms. Main RecommendationsDiagnosis: FND should be diagnosed based on positive signs rather than exclusion. This includes identifying inconsistencies and incongruencies in symptoms that differentiate them from other neurological conditions.Communication: The diagnosis of FND should be communicated to patients promptly and clearly upon diagnosis of the condition. Information provided should include the name of the condition, the basis on which the diagnosis has been made, key principles that can aid self-management, and shared planning of next steps in treatment or accessing treatment.Multidisciplinary Management: Across healthcare service models, treatment should involve a multidisciplinary team to address the multifaceted, and sometimes complex symptoms of FND.Role of General Practitioners (GPs): GPs are integral in the long-term management of FND, providing continuity of care, patient support and education, and facilitating access to specialist services. An informed GP can provide the patient with confidence and agency to be pro-active in their symptoms. Changes in Management as a result of the recommendations The recommendations advocate for a shift from a pure psychiatric framework to a multidisciplinary and person-centred approach. Employing the biopsychosocial framework can enhance patient outcomes, including addressing protective and risk factors for Aboriginal and Torres Strait Islander people.

摘要

功能性神经障碍(FND)因其有时复杂的表现以及与该诊断相关的历史污名,可能带来重大的管理挑战。最近的进展改善了对FND的理解和管理,强调了多学科管理方法的益处。FND的预后各不相同,但循证治疗为许多人提供了缓解的可能性,否则FND可能会导致他们长期残疾,同时也为更多人带来了有意义的症状缓解和功能改善。尽管如此,治疗的可及性有限且不公平,这意味着澳大利亚许多患有FND的人仍因该病而持续经历可治疗的残疾。

诊断

FND应基于阳性体征而非排除来诊断。这包括识别症状中的不一致和不协调之处,以将其与其他神经系统疾病区分开来。

沟通

一旦诊断出FND,应立即将诊断结果及时、清晰地告知患者。提供的信息应包括疾病名称、诊断依据、有助于自我管理的关键原则,以及治疗下一步或获取治疗的共同规划。

多学科管理

在各种医疗服务模式中,治疗应涉及多学科团队,以应对FND多方面且有时复杂的症状。

全科医生(GP)的作用:全科医生在FND的长期管理中不可或缺,提供持续护理、患者支持和教育,并促进获得专科服务。知识渊博的全科医生可以让患者有信心并积极应对自身症状。

主要建议

诊断

FND应基于阳性体征而非排除来诊断。这包括识别症状中的不一致和不协调之处,以将其与其他神经系统疾病区分开来。

沟通

一旦诊断出FND,应立即将诊断结果及时、清晰地告知患者。提供的信息应包括疾病名称、诊断依据、有助于自我管理的关键原则,以及治疗下一步或获取治疗的共同规划。

多学科管理

在各种医疗服务模式中,治疗应涉及多学科团队,以应对FND多方面且有时复杂的症状。

全科医生(GP)的作用:全科医生在FND的长期管理中不可或缺,提供持续护理、患者支持和教育,并促进获得专科服务。知识渊博的全科医生可以让患者有信心并积极应对自身症状。

建议带来的管理变化

这些建议主张从单纯的精神科框架转向多学科和以患者为中心的方法。采用生物心理社会框架可以改善患者预后,包括解决原住民和托雷斯海峡岛民的保护因素和风险因素。

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How stigma unfolds for patients with Functional Neurological Disorder.功能性神经障碍患者的污名化过程。
J Psychosom Res. 2024 Jun;181:111667. doi: 10.1016/j.jpsychores.2024.111667. Epub 2024 Apr 16.
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Why functional neurological disorder is not feigning or malingering.为什么功能性神经疾病不是装病或诈病。
Nat Rev Neurol. 2023 Apr;19(4):246-256. doi: 10.1038/s41582-022-00765-z. Epub 2023 Feb 16.

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