Holmes Jessica, Dahlman Tennyson, Bruns Eric J, Woody Misty, Hendricks Melissa, Sweeney Millie, Anthony Bruno J
Department of Psychiatry, University of Colorado School of Medicine, Mail Stop F550 1890 N. Revere Court, Anschutz Health and Sciences Building, Suite 5240, Aurora, CO 80045, USA.
Department of Psychiatry, University of Washington School of Medicine, Seattle, WA 98195, USA.
Int J Environ Res Public Health. 2025 Jun 3;22(6):894. doi: 10.3390/ijerph22060894.
Parent Peer Support (PPS) provided by other caregivers who have lived experience raising a child with mental health conditions (e.g., such as anxiety, depression, attention, and/or behavior disorders) holds promise as a service that can improve outcomes by helping young people and their families overcome system- and individual-level barriers to receiving care. Here, we describe the development of a collaboration of researchers and Family-Run Organizations (FROs) to provide research support for PPS through three phases (1) developing a research agenda and study aims through a Patient-Centered Outcomes Research Institute (PCORI) "Pipeline to Proposal" grant; (2) designing a pilot study, including refining the measurement framework for a successful grant application to the National Institute of Mental Health (NIMH); and (3) implementing the study through the incorporation of research methodology into FRO operations without disrupting the organizations' missions. This paper summarizes the participatory action research (PAR) strategies employed by this interdisciplinary research team throughout the three phases, covering the benefits and challenges of these unique partnership activities. We focus on how this project was able to increase the relevance of the research to the FROs and the communities they serve and improve dissemination and utilization of the results to support other PPS projects.
由其他有抚养患有心理健康问题（如焦虑、抑郁、注意力和/或行为障碍）孩子经验的照料者提供的家长同伴支持（PPS），有望成为一项通过帮助年轻人及其家庭克服接受护理的系统层面和个人层面障碍来改善结果的服务。在此，我们描述了研究人员与家庭经营组织（FROs）合作开展的三个阶段，为家长同伴支持提供研究支持：（1）通过患者为中心的结果研究机构（PCORI）的“提案管道”资助制定研究议程和研究目标；（2）设计一项试点研究，包括完善测量框架，以便成功向国家心理健康研究所（NIMH）申请资助；（3）通过将研究方法纳入家庭经营组织的运营来实施该研究，同时不干扰这些组织的使命。本文总结了这个跨学科研究团队在三个阶段采用的参与式行动研究（PAR）策略，涵盖了这些独特合作活动的益处和挑战。我们关注该项目如何提高研究与家庭经营组织及其服务社区的相关性，以及如何改善研究结果的传播和利用，以支持其他家长同伴支持项目。
